The relative value of carer and patient quality of life: a person trade-off (PTO) study
Carer quality of life is increasingly considered alongside patient quality of life in economic
evaluation. Important questions remain about how to value carer and patient quality of life …
evaluation. Important questions remain about how to value carer and patient quality of life …
Patient and public involvement in health economics modelling raises the need for normative guidance
S Harvard, E Winsberg - Pharmacoeconomics, 2023 - Springer
Patient and public involvement in health economics research and health technology
assessment has been increasing for some time; however, patient and public involvement in …
assessment has been increasing for some time; however, patient and public involvement in …
Patient and public involvement in numerical aspects of trials (PoINT): exploring patient and public partners experiences and identifying stakeholder priorities
Background and aims Patient and public involvement is increasingly common in trials, but its
quality remains variable in a lot of settings. Many key decisions in trials involve numbers, but …
quality remains variable in a lot of settings. Many key decisions in trials involve numbers, but …
Good to know–This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research
LJ Weiler‐Wichtl, U Leiss, J Gojo… - Cancer …, 2023 - Wiley Online Library
Abstract Background Public and Patient Involvement and Engagement (PPIE) in research is
still a poorly understood and infrequently practiced concept, although the literature stresses …
still a poorly understood and infrequently practiced concept, although the literature stresses …
The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB)
J Carlton, T Peasgood, C Mukuria, J Johnson… - Journal of Patient …, 2022 - Springer
Objectives The value of patient and public involvement and engagement (PPIE) within the
development and refinement of outcome measures is becoming increasingly recognized …
development and refinement of outcome measures is becoming increasingly recognized …
Constructing health state descriptions for low-risk thyroid cancer: stakeholder engagement and formative qualitative research
EG Roth, J Kim, JF Slejko, CD Mullins, JL Doyle… - The Patient-Patient …, 2023 - Springer
Overview This paper describes stakeholder involvement and formative qualitative research
in the creation of health state descriptions (HSDs) or vignettes for low-risk thyroid cancer …
in the creation of health state descriptions (HSDs) or vignettes for low-risk thyroid cancer …
Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers
J Bloska, S Crabtree, N Wollersberger… - Research Involvement …, 2024 - Springer
Background This study was initiated and co-designed by a Participant and Public
Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that …
Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that …
Incorporating public and wider stakeholder views in the design of health state valuation studies in adults and young people: an undervalued resource?
PA Powell - Expert Review of Pharmacoeconomics & Outcomes …, 2024 - Taylor & Francis
Health state valuation (eg, calculating numerical values representing people's relative
preference for living in particular health states) is an essential ingredient for health …
preference for living in particular health states) is an essential ingredient for health …
Patient involvement in research within the Gynecological Cancer InterGroup: A call to action for a systematic approach: Results from a survey
I Nohová, J Andrews, B Votan, A Miller… - Health Science …, 2023 - Wiley Online Library
Abstract Background and Aims Involving patients in research, not only as trial subjects, is not
a newly established practice. Over the last two decades, patient roles have gradually …
a newly established practice. Over the last two decades, patient roles have gradually …
Patient and public involvement in health economics and outcomes research
PK Lorgelly - The Patient-Patient-Centered Outcomes Research, 2021 - Springer
The disability movement first coined the phrase “Nothing about us without us” in the 1990s
[1]. This followed the consumerist movement in the 1980s where patients and the public …
[1]. This followed the consumerist movement in the 1980s where patients and the public …