Forward anchoring in transformative agency: How parents of children with complex feeding difficulties transcend the status quo
To understand how people change the course of their own lives and the lives of those
around them, we need to understand the dynamics of agency. Sannino (2015a, 2015b) …
around them, we need to understand the dynamics of agency. Sannino (2015a, 2015b) …
How is brilliance enacted in professional practices?: Insights from the theory of practice architectures
Brilliance has been overlooked in studies of professional work. This study aimed to
understand how brilliant practices are made possible and enacted in a multidisciplinary …
understand how brilliant practices are made possible and enacted in a multidisciplinary …
'it was that… specialist… that finally listened to us… that's probably a weird answer to what you were expecting': Clinician and carer perspectives on brilliant feeding …
Introduction To extend research on positive aspects of health care, this article focusses on
health care for children who tube‐feed—this is because knowledge about tube‐feeding for …
health care for children who tube‐feed—this is because knowledge about tube‐feeding for …
New consensus definition on defining and measuring care for children with paediatric feeding disorder
Aim This study addresses the absence of a definition of care for children with feeding
disorders, limited agreement on key performance indicators (KPIs), and the lack of data …
disorders, limited agreement on key performance indicators (KPIs), and the lack of data …
Characteristics and health service utilization of children most at risk for prolonged temporary tube feeding
M Syrmis, C Reilly, N Frederiksen… - Nutrition in Clinical …, 2023 - Wiley Online Library
Background This study aimed to describe children at risk of prolonged temporary tube
feeding and evaluate associations between tube feeding duration and child and health …
feeding and evaluate associations between tube feeding duration and child and health …
A natural history of temporary tube feeding care at a children's hospital: A prospective audit of medical records
M Syrmis, N Frederiksen, C Reilly… - Journal of Child Health …, 2022 - journals.sagepub.com
This chart audit characterized the natural history of temporary tube feeding use at a
children's hospital between 1 November 2018 and 30 November 2019. Data were collected …
children's hospital between 1 November 2018 and 30 November 2019. Data were collected …
Parents' experiences of their child's transition from tube to oral feeding during an intensive intervention programme
EJ Lively, S McAllister… - Child: Care, Health and …, 2023 - Wiley Online Library
Background Persistent enteral tube feeding beyond the point of medical and/or physical
necessity provides important nutrition to a child but may have implications for their …
necessity provides important nutrition to a child but may have implications for their …
Changing the world for children with complex feeding difficulties: Cultural-historical analyses of transformative agency
How to bring about positive change is a key concern in cultural-historical theory. There is an
urgent imperative to address questions of transformation at the nexus of the individual and …
urgent imperative to address questions of transformation at the nexus of the individual and …
[PDF][PDF] “The Kitchen is My Favrote Place in the House”: A World Worth Living in for Children with Feeding Difficulties and Their Families
N Hopwood, H Gowans, J Gowans… - Living Well in a World …, 2023 - library.oapen.org
We cannot live well without food. However, a significant number of children experience
medical issues that impact their feeding, in some cases requiring feeding via a tube. The …
medical issues that impact their feeding, in some cases requiring feeding via a tube. The …
Cerebral Palsy and Nasogastric Tube Feeding
S Wilkie, S Clarke - Care Planning in Children and Young …, 2023 - Wiley Online Library
This chapter presents a detailed case scenario of an eight‐year‐old boy who was
diagnosed as having cerebral palsy at the age of nine months, after his parents had …
diagnosed as having cerebral palsy at the age of nine months, after his parents had …