The burden of X-linked retinitis pigmentosa on patients and society: a narrative literature review
M Chivers, N Li, F Pan, H Wieffer, R Slowik… - ClinicoEconomics …, 2021 - Taylor & Francis
X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …
Systematic review and meta-synthesis of coping with retinitis pigmentosa: implications for improving quality of life
G Garip, A Kamal - BMC ophthalmology, 2019 - Springer
Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …
conditions, and the leading cause of inherited blindness in people under the age of 60. The …
Human primitive mesenchymal stem cell-derived retinal progenitor cells improved neuroprotection, neurogenesis, and vision in rd12 mouse model of retinitis …
C Brown, P Agosta, C McKee, K Walker… - Stem Cell Research & …, 2022 - Springer
Background Currently, there is no treatment for retinal degenerative diseases (RDD) such as
retinitis pigmentosa (RP). Stem cell-based therapies could provide promising opportunities …
retinitis pigmentosa (RP). Stem cell-based therapies could provide promising opportunities …
Enhanced depth navigation through augmented reality depth mapping in patients with low vision
Abstract Patients diagnosed with Retinitis Pigmentosa (RP) show, in the advanced stage of
the disease, severely restricted peripheral vision causing poor mobility and decline in quality …
the disease, severely restricted peripheral vision causing poor mobility and decline in quality …
Influence of open-source virtual-reality based gaze training on navigation performance in Retinitis pigmentosa patients in a crossover randomized controlled trial
A Neugebauer, A Sipatchin, K Stingl, I Ivanov, S Wahl - Plos one, 2024 - journals.plos.org
Methods A group of RP patients (n= 8, aged 20-60) participated in a study consisting of two
4-week-phases, both carried out by the same patient group in randomized order: In the …
4-week-phases, both carried out by the same patient group in randomized order: In the …
Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study
R Lange, A Kumagai, S Weiss, KB Zaffke, S Day… - Journal of Patient …, 2021 - Springer
Background Existing patient-reported outcome (PRO) measures may not be relevant to the
full range of functional and vision-related quality of life (VR-QOL) concerns of individuals …
full range of functional and vision-related quality of life (VR-QOL) concerns of individuals …
Transcorneal electrical stimulation dose-dependently slows the visual field loss in retinitis pigmentosa
A Stett, A Schatz, F Gekeler… - … Vision Science & …, 2023 - tvst.arvojournals.org
Purpose: To assess whether transcorneal electrical stimulation (TcES) current-dependently
slows progressive loss of visual field area (VFA) in retinitis pigmentosa (RP). Methods: Data …
slows progressive loss of visual field area (VFA) in retinitis pigmentosa (RP). Methods: Data …
Beyond the NEI-VFQ: recent experience in the development and utilization of patient-reported outcomes for inherited retinal diseases
T Durham, J Banhazi… - Cold Spring …, 2023 - perspectivesinmedicine.cshlp.org
Patient-reported outcome measures (PROMs) are tools designed to capture how a patient
feels or functions, without the input or interpretation of anyone else. The earliest PROMs …
feels or functions, without the input or interpretation of anyone else. The earliest PROMs …
Exploring the quality of life issues in people with retinal diseases: a qualitative study
M Prem Senthil, J Khadka, JS Gilhotra, S Simon… - Journal of patient …, 2017 - Springer
Background The lack of an appropriate retina-specific patient-reported outcome instrument
restricts the understanding of the full impact of hereditary retinal diseases and other less …
restricts the understanding of the full impact of hereditary retinal diseases and other less …
[HTML][HTML] A novel framework to redefine societal disability as technologically-enabled ability: A case of multi-disciplinary innovations for safe autonomous spatial …
E Pedzisai, S Charamba - Transportation Research Interdisciplinary …, 2023 - Elsevier
Autonomous spatial navigation (ASN) is a challenge for millions of disabled people globally,
especially persons with visual impairment (PwVI) who depend on either caregivers or …
especially persons with visual impairment (PwVI) who depend on either caregivers or …