The burden of X-linked retinitis pigmentosa on patients and society: a narrative literature review

M Chivers, N Li, F Pan, H Wieffer, R Slowik… - ClinicoEconomics …, 2021 - Taylor & Francis
X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …

Systematic review and meta-synthesis of coping with retinitis pigmentosa: implications for improving quality of life

G Garip, A Kamal - BMC ophthalmology, 2019 - Springer
Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …

Human primitive mesenchymal stem cell-derived retinal progenitor cells improved neuroprotection, neurogenesis, and vision in rd12 mouse model of retinitis …

C Brown, P Agosta, C McKee, K Walker… - Stem Cell Research & …, 2022 - Springer
Background Currently, there is no treatment for retinal degenerative diseases (RDD) such as
retinitis pigmentosa (RP). Stem cell-based therapies could provide promising opportunities …

Enhanced depth navigation through augmented reality depth mapping in patients with low vision

AN Angelopoulos, H Ameri, D Mitra, M Humayun - Scientific reports, 2019 - nature.com
Abstract Patients diagnosed with Retinitis Pigmentosa (RP) show, in the advanced stage of
the disease, severely restricted peripheral vision causing poor mobility and decline in quality …

Influence of open-source virtual-reality based gaze training on navigation performance in Retinitis pigmentosa patients in a crossover randomized controlled trial

A Neugebauer, A Sipatchin, K Stingl, I Ivanov, S Wahl - Plos one, 2024 - journals.plos.org
Methods A group of RP patients (n= 8, aged 20-60) participated in a study consisting of two
4-week-phases, both carried out by the same patient group in randomized order: In the …

Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study

R Lange, A Kumagai, S Weiss, KB Zaffke, S Day… - Journal of Patient …, 2021 - Springer
Background Existing patient-reported outcome (PRO) measures may not be relevant to the
full range of functional and vision-related quality of life (VR-QOL) concerns of individuals …

Transcorneal electrical stimulation dose-dependently slows the visual field loss in retinitis pigmentosa

A Stett, A Schatz, F Gekeler… - … Vision Science & …, 2023 - tvst.arvojournals.org
Purpose: To assess whether transcorneal electrical stimulation (TcES) current-dependently
slows progressive loss of visual field area (VFA) in retinitis pigmentosa (RP). Methods: Data …

Beyond the NEI-VFQ: recent experience in the development and utilization of patient-reported outcomes for inherited retinal diseases

T Durham, J Banhazi… - Cold Spring …, 2023 - perspectivesinmedicine.cshlp.org
Patient-reported outcome measures (PROMs) are tools designed to capture how a patient
feels or functions, without the input or interpretation of anyone else. The earliest PROMs …

Exploring the quality of life issues in people with retinal diseases: a qualitative study

M Prem Senthil, J Khadka, JS Gilhotra, S Simon… - Journal of patient …, 2017 - Springer
Background The lack of an appropriate retina-specific patient-reported outcome instrument
restricts the understanding of the full impact of hereditary retinal diseases and other less …

[HTML][HTML] A novel framework to redefine societal disability as technologically-enabled ability: A case of multi-disciplinary innovations for safe autonomous spatial …

E Pedzisai, S Charamba - Transportation Research Interdisciplinary …, 2023 - Elsevier
Autonomous spatial navigation (ASN) is a challenge for millions of disabled people globally,
especially persons with visual impairment (PwVI) who depend on either caregivers or …