[HTML][HTML] Biobanking in health care: evolution and future directions
L Coppola, A Cianflone, AM Grimaldi… - Journal of translational …, 2019 - Springer
Background The aim of the present review is to discuss how the promising field of
biobanking can support health care research strategies. As the concept has evolved over …
biobanking can support health care research strategies. As the concept has evolved over …
[PDF][PDF] Forgetting personal data and revoking consent under the GDPR: Challenges and proposed solutions
Abstract Upon the General Data Protection Regulation's (GDPR) application on 25 May
2018 across the European Union, new legal requirements for the protection of personal data …
2018 across the European Union, new legal requirements for the protection of personal data …
[HTML][HTML] Dynamic consent: a patient interface for twenty-first century research networks
J Kaye, EA Whitley, D Lund, M Morrison… - European journal of …, 2015 - nature.com
Biomedical research is being transformed through the application of information
technologies that allow ever greater amounts of data to be shared on an unprecedented …
technologies that allow ever greater amounts of data to be shared on an unprecedented …
[HTML][HTML] Dynamic consent: a potential solution to some of the challenges of modern biomedical research
I Budin-Ljøsne, HJA Teare, J Kaye, S Beck… - BMC medical …, 2017 - Springer
Background Innovations in technology have contributed to rapid changes in the way that
modern biomedical research is carried out. Researchers are increasingly required to …
modern biomedical research is carried out. Researchers are increasingly required to …
Electronic health records: new opportunities for clinical research
P Coorevits, M Sundgren, GO Klein… - Journal of internal …, 2013 - Wiley Online Library
Clinical research is on the threshold of a new era in which electronic health records (EHR s)
are gaining an important novel supporting role. Whilst EHR s used for routine clinical care …
are gaining an important novel supporting role. Whilst EHR s used for routine clinical care …
Navigating cross-cultural research: methodological and ethical considerations
T Broesch, AN Crittenden… - … of the Royal …, 2020 - royalsocietypublishing.org
The intensifying pace of research based on cross-cultural studies in the social sciences
necessitates a discussion of the unique challenges of multi-sited research. Given an …
necessitates a discussion of the unique challenges of multi-sited research. Given an …
[HTML][HTML] Reflections on dynamic consent in biomedical research: the story so far
HJA Teare, M Prictor, J Kaye - European journal of human genetics, 2021 - nature.com
Dynamic consent (DC) was originally developed in response to challenges to the informed
consent process presented by participants agreeing to 'future research'in biobanking. In the …
consent process presented by participants agreeing to 'future research'in biobanking. In the …
[HTML][HTML] Public attitudes toward consent and data sharing in biobank research: a large multi-site experimental survey in the US
SC Sanderson, KB Brothers, ND Mercaldo… - The American Journal of …, 2017 - cell.com
Individuals participating in biobanks and other large research projects are increasingly
asked to provide broad consent for open-ended research use and widespread sharing of …
asked to provide broad consent for open-ended research use and widespread sharing of …
[HTML][HTML] Broad consent for biobanks is best–provided it is also deep
RB Mikkelsen, M Gjerris, G Waldemar, P Sandøe - BMC medical ethics, 2019 - Springer
Background As biobank research has become increasingly widespread within biomedical
research, study-specific consent to each study, a model derived from research involving …
research, study-specific consent to each study, a model derived from research involving …
[HTML][HTML] Astronaut omics and the impact of space on the human body at scale
Future multi-year crewed planetary missions will motivate advances in aerospace nutrition
and telehealth. On Earth, the Human Cell Atlas project aims to spatially map all cell types in …
and telehealth. On Earth, the Human Cell Atlas project aims to spatially map all cell types in …