Caring for Africa's sickle cell children: will we rise to the challenge?

AP Oron, DL Chao, EE Ezeanolue, LN Ezenwa, FB Piel… - BMC medicine, 2020 - Springer
Background Most of the world's sickle cell disease (SCD) burden is in Africa, where it is a
major contributor to child morbidity and mortality. Despite the low cost of many preventive …

Role of genomics literacy in reducing the burden of common genetic diseases in Africa

G Mboowa, I Sserwadda - Molecular genetics & genomic …, 2019 - Wiley Online Library
Abstract Background In Africa, health practitioners and the current knowledge of the public
on genetics and genomics is still very low and yet this has potential to reduce the burden of …

Economic burden and catastrophic cost among people living with sickle cell disease, attending a tertiary health institution in south-east zone, Nigeria

CN Amarachukwu, IL Okoronkwo, MC Nweke… - Plos one, 2022 - journals.plos.org
Out-of-pocket spending and lack of adequate health policy support for people living with
sickle cell disease in Nigeria may predispose to high economic burden and catastrophic …

Establishing a sickle cell disease registry in Africa: experience from the Sickle Pan-African Research Consortium, Kumasi-Ghana

V Paintsil, EX Amuzu, I Nyanor, E Asafo-Adjei… - Frontiers in …, 2022 - frontiersin.org
Sickle cell disease (SCD) is the most common clinically significant hemoglobinopathy,
characterized by painful episodes, anemia, high risk of infection, and other acute and …

Economic burden of sickle cell disease in Brazil

AC Silva-Pinto, FF Costa, SFM Gualandro… - PLoS …, 2022 - journals.plos.org
Background Sickle cell disease (SCD) may cause several impacts to patients and the whole
society. About 4% of the population has the sickle cell trait in Brazil, and 60,000 to 100,000 …

Methods used to account for caregivers' sex and gender within studies examining the financial burden of caregivers of children and adolescents: Results from a …

JR Guertin, M Gilbert-Ouimet, M Dugas… - ClinicoEconomics …, 2024 - Taylor & Francis
Background Interest in the financial burden of informal caregivers has been growing.
Unfortunately, it remains unclear which method (s) should be used when quantifying this …

Outcome of Hydroxyurea use in SCD and evaluation of patients' perception and experience in Nigeria

RI Chianumba, AOD Ofakunrin, J Morrice… - Frontiers in …, 2022 - frontiersin.org
Introduction: Hydroxyurea (HU) has been shown to be beneficial in the management of
sickle cell disease (SCD) as it improves treatment outcomes. However, despite the benefits …

Hospitalizations among children with sickle cell disease enrolled in the Kumasi Sickle Cell Pan African Consortium (SPARCo) database: A cross sectional study

YG Oppong–Mensah, SF Odoom, I Nyanor… - Health Science …, 2023 - Wiley Online Library
Abstract Background and Aims Sickle cell disease (SCD) is the commonest monogenic
haemolytic disorder in Africa. Despite strides made in its management, a significant …

Knowledge, awareness, and attitude of premarital screening with special focus on sickle cell disease: a study from Odisha

BK Bindhani, NK Devi, JK Nayak - Journal of community genetics, 2020 - Springer
Sickle cell disease (SCD) is a genetic disorder with an estimated 5200 live births each year
indicating towards a major public health issue in India. Although SCD has been described in …

[HTML][HTML] Hospitalizations of children with sickle cell disease in the Brazilian Unified Health System in the state of Minas Gerais,

APPC Fernandes, FA Avendanha, MB Viana - Jornal de Pediatria, 2017 - SciELO Brasil
Objective: To identify and characterize hospital admissions and readmissions in the
Brazilian Unified Public Health System (Sistema Único de Saúde [SUS]) in children with …