A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions
SM Aoun, B Bentley, L Funk, C Toye… - Palliative …, 2013 - journals.sagepub.com
Background: There is growing awareness that different terminal diseases translate into
different family caregiver experiences, and the palliative and supportive care needs of these …
different family caregiver experiences, and the palliative and supportive care needs of these …
Factors to consider for motor neurone disease carer intervention research: a narrative literature review
C Gluyas, S Mathers, NH Anderson… - Palliative & supportive …, 2017 - cambridge.org
Objective: The experience of caregiving in the context of motor neurone disease (MND) is
extremely challenging. Over the past 15 years, quantitative and qualitative studies have …
extremely challenging. Over the past 15 years, quantitative and qualitative studies have …
What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?
A Hogden, D Greenfield, P Nugus… - Patient preference and …, 2013 - Taylor & Francis
Purpose Family carers of patients with amyotrophic lateral sclerosis (ALS) are presumed to
have frequent involvement in decision-making for symptom management and quality of life …
have frequent involvement in decision-making for symptom management and quality of life …
Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease
BackgroundFamily carers of people living with motor neurone disease (MND) face
continuous changes and losses during the progression of the disease, impacting on their …
continuous changes and losses during the progression of the disease, impacting on their …
The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease
D Oliver, A Radunovic, A Allen… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
The care of people with motor neuron disease/amyotrophic lateral sclerosis is often complex
and involves a wide multidisciplinary team approach. The National Institute for Health and …
and involves a wide multidisciplinary team approach. The National Institute for Health and …
“A monster that lives in our lives”: experiences of caregivers of people with motor neuron disease and identifying avenues for support
NH Anderson, C Gluyas, S Mathers… - BMJ Supportive & …, 2019 - spcare.bmj.com
Background A developing body of evidence has provided valuable insight into the
experiences of caregivers of people with motor neuron disease; however, understandings of …
experiences of caregivers of people with motor neuron disease; however, understandings of …
Education requirements for nurses working with people with complex neurological conditions: Relatives' perceptions
MJ Baker - Nurse Education in Practice, 2011 - Elsevier
This paper reports on the exploration of relatives' perceptions about the need for education
and training of nurses (registered nurses and healthcare assistants) who work with people …
and training of nurses (registered nurses and healthcare assistants) who work with people …
Living well: exploring experiences of carers of people with motor neurone disease attending an early-access support group
J Derbyshire, J Atkinson, Y Dunn… - International Journal of …, 2023 - magonlinelibrary.com
Background/Aims Motor neurone disease is associated with rapid disease progression and
disability, and receiving a diagnosis can cause shock and fear in the patient and their carers …
disability, and receiving a diagnosis can cause shock and fear in the patient and their carers …
Att vara närstående till en person som drabbats av” den värsta tänkbara sjukdomen”, ALS
M Hermansson, D Lindström - 2023 - diva-portal.org
Bakgrund: Amyotrofisk lateralskleros (ALS) är en obotlig sjukdom som bryter ned de perifera
och centrala motoriska nervcellerna i nervsystemet och har ett dödligt utfall. Närstående får …
och centrala motoriska nervcellerna i nervsystemet och har ett dödligt utfall. Närstående får …
Entscheidungen von Patienten und deren Proxy bezüglich existentieller Fragestellungen und Shared Decision Making im Rahmen der Amyotrophen Lateralsklerose
A Ammann - 2022 - oparu.uni-ulm.de
Die amyotrophe Lateralsklerose (ALS) ist die häufigste adulte neurodegenerative
Motoneuronenerkrankung und führt zu weitreichenden Einschränkungen der physischen …
Motoneuronenerkrankung und führt zu weitreichenden Einschränkungen der physischen …