Background Patients with advanced disease may not be invited to participate in research
based on the assumption that participation would be too burdensome for them. The aim of …

The Health Belief Model provides a framework to understand motivators for volunteering for
medical research. Motivators can take the form of social and personal benefits. In this …

Background/Aims Pain is a major concern of patients with advanced cancer and their
caregivers. There is strong evidence that pain coping skills training interventions based on …

ObjectivesThe concept of altruism is evidenced in various disciplines but remains
understudied in end-of-life (EOL) contexts. Patients at the EOL are often seen as passive …

Background: Ethical concerns were identified as a potential barrier to advancing palliative
and end-of-life science at the 2004 National Institutes of Health State of the Science …

Background Research in PC (Palliative Care) is frequently challenging for patient's frailty,
study design, professional misconceptions, and so on. Little is known about specificity in PC …

Objectives Palliative care needs to embrace research to guide service development and
effective symptom management. Healthcare professionals often feel research is too …

Objective: The positioning and meaning of palliative care within the healthcare system lacks
clarity which adds a level of complexity to the process of transition to palliative care. This …

Continuous monitoring and management of a person's symptoms and performance status
are critical for the delivery of effective palliative care. This monitoring occurs routinely in …

Background There are significant policy imperatives to involve consumers at the outset of
and throughout research. How best to achieve this in an authentic and meaningful way is …