Enhancing data protection in dynamic consent management systems: formalizing privacy and security definitions with differential privacy, decentralization, and Zero …

MI Khalid, M Ahmed, J Kim - Sensors, 2023 - mdpi.com
Dynamic consent management allows a data subject to dynamically govern her consent to
access her data. Clearly, security and privacy guarantees are vital for the adoption of …

When research becomes practice: the concept of the therapeutic misconception and challenges to consent in clinical trials

S Heynemann, W Lipworth… - Internal Medicine …, 2023 - Wiley Online Library
Many factors influence patients' decisions to participate in clinical trials. For many, the
primary motivation is the possibility that they might derive some benefit from participation …

Blockchain Based Dynamic Consent Management Systems for Enhancing Quality of Life for People with Disabilities

MI Khalid, M Ahmed - 2023 IEEE International Smart Cities …, 2023 - ieeexplore.ieee.org
This research investigates the potential impact of dynamic consent management systems
(DCMSs) on individuals with disabilities (PwDs). An extensive literature review found a lack …

Ethical frameworks of informed consent in the age of pediatric precision medicine

D Chen - Cambridge Prisms: Precision Medicine, 2024 - cambridge.org
Precision medicine is an emergent medical paradigm that uses information technology to
inform the use of targeted therapies and treatments. One of the first steps of precision …

Blockchains and dynamic consent in biobanking

F Zatti - GDPR Requirements for Biobanking Activities Across …, 2021 - papers.ssrn.com
Sars-CoV-2 highlighted how relevant is the need to share biobank data in a pandemic, and
concurrently, how helpful blockchain technology could be in allowing it to happen even if …

[PDF][PDF] Rethinking Informed Consent in mHealth

I Loosman - 2024 - research.tue.nl
Rethinking Informed Consent in mHealth Page 1 Rethinking Informed Consent in mHealth
Citation for published version (APA): Loosman, I. (in press). Rethinking Informed Consent in …

Asmens sutikimo dalyvauti biobanko veikloje ir biobanko dalyvio sveikatai svarbios informacijos grąžinimo etiniai ir teisiniai ypatumai Lietuvoje

J Lekstutienė - 2023 - epublications.vu.lt
Abstract [eng] In this dissertation, the models of a person's consent to biobanking
(hereinafter referred to as 'consent') and the return of health-related findings important to …

Blockchain and Dynamic Consent: Can the Blockchain Realise Proper Support for Dynamic Consent?

F Zatti - GDPR Requirements for Biobanking Activities Across …, 2023 - Springer
The pandemic has highlighted the importance of sharing biobank data and also the way in
which blockchain technology could help facilitate this process. However, legal issues about …

[PDF][PDF] Assessing the Evolution and Influence of Medical Open Databases on Biomedical Research and Healthcare Innovation: A 25-Year Perspective with a Focus on …

CHC Wang, DC Tarng, DM Niu, SH Chiou, CY Wu… - s3.ca-central-1.amazonaws.com
The integration of medical open databases with artificial intelligence (AI) technologies marks
a transformative era in biomedical research and healthcare innovation. Over the past 25 …

Blockchain and Dynamic Consent

F Zatti - GDPR Requirements for Biobanking Activities Across …, 2022 - Springer
Biobank data sharing is relevant during a pandemic, as Sars-CoV-2 showed. Even though
legal issues still need to be sorted out, blockchain technology could help allow this. The …