[HTML][HTML] Experiences and perspectives of healthcare professionals implementing advance care planning for people suffering from life-limiting illness: a systematic …

N Zhu, L Yang, X Wang, J Tuo, L Chen, R Deng… - BMC Palliative Care, 2023 - Springer
Background Life-limited patients may lose decision-making abilities during disease
progression. Advance care planning can be used as a discussion method for healthcare …

[HTML][HTML] Advance care planning in neurodegenerative disorders: a scoping review

A Giordano, L De Panfilis, M Perin, L Servidio… - International Journal of …, 2022 - mdpi.com
Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients
to define their goals/preferences for future medical care, together with their carers and health …

[HTML][HTML] “I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A …

J Koffman, C Penfold, L Cottrell, B Farsides, CJ Evans… - Plos one, 2022 - journals.plos.org
Background Little is known about how people with multiple sclerosis (MS) and their families
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …

How to enhance advance care planning research?

A De Vleminck, L Van den Block - Palliative Medicine, 2023 - journals.sagepub.com
De Vleminck and Van den Block 661 underlying goals of patients and caregivers. Instead,
many trials focus on distal end-of-life outcomes such as concordance between end-of-life …

[HTML][HTML] Mechanisms and contextual influences on the implementation of advance care planning for older people in long-term care facilities: A realist review

Y Zhou, A Wang, C Ellis-Smith, D Braybrook… - International Journal of …, 2022 - Elsevier
Background Older people in long-term care facilities face clinical uncertainty and
unpredictable decline. Advance care planning enables older people to identify preferences …

Neuro-oncology and supportive care: the role of the neurologist

NE Stec, T Walbert - Neurological Sciences, 2022 - Springer
The diagnosis of a brain tumor is a life-changing event for patients and their families.
Despite numerous treatment advances, malignant brain tumors are universally incurable …

Palliative care knowledge and attitudes among patients with neuroinflammatory diseases

AB Ben-Zacharia, HT Brugger, S Carbone… - Journal of Palliative …, 2024 - liebertpub.com
Background: Neuroinflammatory diseases are progressive leading to loss of function and
disability. Although palliative care (PC) utilization has increased globally, it has scarcely …

Comment on:" Advance" care planning reenvisioned

A Bradshaw, J Bayly, C Penfold… - Journal of the …, 2021 - pubmed.ncbi.nlm.nih.gov
Comment on: "Advance" care planning reenvisioned Comment on: "Advance" care planning
reenvisioned J Am Geriatr Soc. 2021 May;69(5):1177-1179. doi: 10.1111/jgs.17058. Epub …

[HTML][HTML] Examining how goals of care communication are conducted between doctors and patients with severe acute illness in hospital settings: A realist systematic …

J Gross, J Koffman - Plos one, 2024 - journals.plos.org
Background Patient involvement in goals of care decision-making has shown to enhance
satisfaction, affective-cognitive outcomes, allocative efficiency, and reduce unwarranted …

[HTML][HTML] Influence of individual, illness and environmental factors on place of death among people with neurodegenerative diseases: a retrospective, observational …

R Nicholas, E Nicholas, M Hannides… - BMJ Supportive & …, 2021 - spcare.bmj.com
Background In long-term neurological conditions, location of death is poorly understood but
is seen as a marker of quality of dying. Objective To examine individual, illness and …