Palliation, end of life care and ventilation withdrawal in neuromuscular disorders

J Elverson, H Evans… - Chronic respiratory …, 2023 - journals.sagepub.com
Background/objectives The role of palliative care in the support of patients with
neuromuscular disorders (NMDs) is generally recognised in spite of the scarcity of condition …

Triggers for referral to specialized palliative care in advanced neurologic and neurosurgical conditions: a systematic review

K McConvey, K Kazazian… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives To systematically review the literature for the most suitable
trigger criteria for referral to specialist palliative care services in life-limiting and life …

The adult multidisciplinary respiratory neuromuscular clinic

NM Shah, PB Murphy, G Kaltsakas - Breathe, 2020 - Eur Respiratory Soc
Many neuromuscular disorders (NMD) are complicated by respiratory failure. These patients
are best managed in a multidisciplinary outpatient clinic to provide timely access to the …

Palliative care in amyotrophic lateral sclerosis

S Mercadante - Journal of Pain and Symptom Management, 2023 - Elsevier
Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease of the motor
neurons. Given the evolutive characteristics of this disease, palliative care principles should …

Differential utilization of palliative care consultation between medical and surgical services

MT Nguyen, T Feeney, C Kim… - American Journal of …, 2020 - journals.sagepub.com
There is a paucity of data regarding the utilization of palliative care consultation (PCC) in
surgical specialties. We conducted a retrospective review of 2321 adult patients (age≥ 18) …

When to initiate palliative care in neurology

B Dawson, K McConvey, TE Gofton - Handbook of Clinical Neurology, 2022 - Elsevier
Life-limiting and life-threatening neurologic conditions often progress slowly. Patients live
with a substantial symptom burden over a long period of time, and there is often a high …

Mortality in neuromuscular early onset scoliosis following spinal deformity surgery

H Matsumoto, AN Fano, ET Herman… - Journal of Pediatric …, 2022 - journals.lww.com
Background: The purpose of this study was to report mortality and associated risk factors in
neuromuscular early onset scoliosis following spinal deformity surgery. Methods: This is a …

Patient-level factors influencing palliative care consultation at a safety-net urban hospital

MT Nguyen, T Feeney, C Kim… - American Journal of …, 2021 - journals.sagepub.com
The influence of patient-level factors on palliative and hospice care is unclear. We
conducted a retrospective review of 2321 patients aged≥ 18 that died within 6 months of …

Early identification of pediatric neurology patients with palliative care needs: a pilot study

AM Lyons-Warren, RC Stowe… - American Journal of …, 2019 - journals.sagepub.com
Palliative care services are beneficial for pediatric neurology patients with chronic, life-
limiting illnesses. However, timely referral to palliative care may be impeded due to an …

Надо ли реабилитировать пациентовс нервно-мышечными заболеваниями?

ЮН Рушкевич, ОВ Галиевская, СА Лихачев… - Неврология и …, 2020 - elibrary.ru
Нервно-мышечные заболевания (НМЗ) представляют собой разнородную группу
нозологий с поражением поперечно-полосатой мускулатуры. Реабилитация таких …