Background Patient engagement in research refers to collaboration between researchers
and patients (ie, individuals with lived experience including informal caregivers) in …

Background: Quality of Life (QoL) questionnaires are used to describe the impact of aphasia
on stroke survivors' life. People with aphasia (PWA) are traditionally excluded from research …

Objective To propose a possible taxonomy for diverse stakeholders outside the healthcare
communication field and to promote meaningful patient engagement in healthcare settings …

Background The role of patient participation and representation during crises, such as the
COVID‐19 pandemic, has been under‐researched. Existing studies paint a pessimistic …

Opinion statement Research advocacy is an evolving concept and should be tailored for the
colorectal cancer research community. Research advocacy training and evaluation must be …

In the September 2019 Special Issue of Health Expectations on Patient and Public
Involvement and Engagement (PPIE) initiatives, Hickey and Chambers 1 highlighted 'the …

Frank-Walter Steinmeier said in his television speech on 11 April 2020. This is as time of
carefully addressing ethical principles that both guide and challenge acts and policies, to …

Introduction People with dementia and their carers experience social stigma and often
refrain from social participation. Significant improvement might be achieved by creating …

Background Patient and public involvement in healthcare can be particularly challenging
during crises such as the COVID‐19 pandemic. Objective The aims of the study, which …

than vaccination, also means, to at least accept that some people will not fully recover from
Covid-19 or even die. Others argued that to prepare our health care facilities is a sign of …