The CARE principles for indigenous data governance

S Carroll, I Garba, O Figueroa-Rodríguez… - Data science …, 2020 - research.ed.ac.uk
Concerns about secondary use of data and limited opportunities for benefit-sharing have
focused attention on the tension that Indigenous communities feel between (1) protecting …

[图书][B] Indigenous data sovereignty and policy

M Walter, T Kukutai, SR Carroll, D Rodriguez-Lonebear - 2021 - library.oapen.org
This book examines how Indigenous Peoples around the world are demanding greater data
sovereignty, and challenging the ways in which governments have historically used …

The Beijing effect: China's Digital Silk Road as transnational data governance

MS Erie, T Streinz - NYUJ Int'l L. & Pol., 2021 - HeinOnline
The emerging role of the People's Republic of China (PRC or China) in global governance
in the twenty-first cen-tury has become increasingly prominent with the PRC's sprawling Belt …

Social Determinants of Health Factors for Gene–Environment COVID‐19 Research: Challenges and Opportunities

J Phuong, NO Riches, C Madlock‐Brown… - Advanced …, 2022 - Wiley Online Library
The characteristics of a person's health status are often guided by how they live, grow, learn,
their genetics, as well as their access to health care. Yet, all too often, studies examining the …

Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - Frontiers in …, 2022 - frontiersin.org
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …

Indigenous and tribal peoples data governance in health research: A systematic review

KE Griffiths, J Blain, CM Vajdic, L Jorm - International journal of …, 2021 - mdpi.com
There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …

Sovereignty 2.0

A Chander, H Sun - Vand. J. Transnat'l L., 2022 - HeinOnline
Digital sovereignty-the exercise of control over the internet-is the ambition of the world's
leaders, from Australia to Zimbabwe, seen as a bulwark against both foreign states and …

The Ascension of Indigenous Cultural Property Law

AR Riley - Mich. L. Rev., 2022 - HeinOnline
Indigenous Peoples across the world are calling on nation-states to" decolonize" laws,
structures, and institutions that negatively impact them. Just recently, the New York Times …

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

SR Carroll, R Plevel, LL Jennings, I Garba… - Frontiers in …, 2022 - frontiersin.org
Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …

[HTML][HTML] Issues with variability in electronic health record data about race and ethnicity: descriptive analysis of the national COVID cohort collaborative data enclave

L Cook, J Espinoza, NG Weiskopf… - JMIR medical …, 2022 - medinform.jmir.org
Background: The adverse impact of COVID-19 on marginalized and under-resourced
communities of color has highlighted the need for accurate, comprehensive race and …