The CARE principles for indigenous data governance
Concerns about secondary use of data and limited opportunities for benefit-sharing have
focused attention on the tension that Indigenous communities feel between (1) protecting …
focused attention on the tension that Indigenous communities feel between (1) protecting …
[图书][B] Indigenous data sovereignty and policy
This book examines how Indigenous Peoples around the world are demanding greater data
sovereignty, and challenging the ways in which governments have historically used …
sovereignty, and challenging the ways in which governments have historically used …
The Beijing effect: China's Digital Silk Road as transnational data governance
The emerging role of the People's Republic of China (PRC or China) in global governance
in the twenty-first cen-tury has become increasingly prominent with the PRC's sprawling Belt …
in the twenty-first cen-tury has become increasingly prominent with the PRC's sprawling Belt …
Social Determinants of Health Factors for Gene–Environment COVID‐19 Research: Challenges and Opportunities
The characteristics of a person's health status are often guided by how they live, grow, learn,
their genetics, as well as their access to health care. Yet, all too often, studies examining the …
their genetics, as well as their access to health care. Yet, all too often, studies examining the …
Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …
worldwide to access and utilize the data for new projects. As new technologies generate …
Indigenous and tribal peoples data governance in health research: A systematic review
There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …
The Ascension of Indigenous Cultural Property Law
AR Riley - Mich. L. Rev., 2022 - HeinOnline
Indigenous Peoples across the world are calling on nation-states to" decolonize" laws,
structures, and institutions that negatively impact them. Just recently, the New York Times …
structures, and institutions that negatively impact them. Just recently, the New York Times …
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …
to no benefit. In genomics, such research not only exposes communities to harms and risks …
[HTML][HTML] Issues with variability in electronic health record data about race and ethnicity: descriptive analysis of the national COVID cohort collaborative data enclave
Background: The adverse impact of COVID-19 on marginalized and under-resourced
communities of color has highlighted the need for accurate, comprehensive race and …
communities of color has highlighted the need for accurate, comprehensive race and …