Meaningful patient and public involvement in digital health innovation, implementation and evaluation: a systematic review

R Baines, H Bradwell, K Edwards, S Stevens… - Health …, 2022 - Wiley Online Library
Introduction The importance of meaningfully involving patients and the public in digital
health innovation is widely acknowledged, but often poorly understood. This review …

Patient and public involvement in cancer research: A scoping review

S Colomer‐Lahiguera, M Steimer, U Ellis… - Cancer …, 2023 - Wiley Online Library
Introduction Patient and public involvement (PPI) in research emphasizes the importance of
doing research with, rather than for people with lived health/illness experience (s). The …

Including all voices in international data-sharing governance

J Kaye, SF Terry, E Juengst, S Coy, JR Harris… - Human Genomics, 2018 - Springer
Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …

[HTML][HTML] Cancer diagnostic tools to aid decision-making in primary care: mixed-methods systematic reviews and cost-effectiveness analysis.

A Medina-Lara, B Grigore, R Lewis… - Health Technology …, 2020 - ncbi.nlm.nih.gov
BACKGROUND Tools based on diagnostic prediction models are available to help general
practitioners diagnose cancer. It is unclear whether or not tools expedite diagnosis or affect …

Frameworks for self-management support for chronic disease: a cross-country comparative document analysis

S O'Connell, VJC Mc Carthy, E Savage - BMC Health Services Research, 2018 - Springer
Background In a number of countries, frameworks have been developed to improve self-
management support (SMS) in order to reduce the impact of chronic disease. The …

Activity provider-facilitated patient and public involvement with care home residents

K Micklewright, A Killett, G Akdur, P Biswas… - Research Involvement …, 2024 - Springer
Background In care home research, residents are rarely included in patient and public
involvement and engagement (PPIE) despite their lived experiences of day-to-day care. This …

[HTML][HTML] The ethical matrix as a method for involving people living with disease and the wider public (PPI) in near-term artificial intelligence research

BS Kelly, A Kirwan, MS Quinn, AM Kelly, P Mathur… - Radiography, 2023 - Elsevier
Introduction The rapid pace of research in the field of Artificial Intelligence in medicine has
associated risks for near-term AI. Ethical considerations of the use of AI in medicine remain a …

[HTML][HTML] Association Between the Characteristics of mHealth Apps and User Input During Development and Testing: Secondary Analysis of App Assessment Data

AL Frey, R Baines, S Hunt, R Kent… - JMIR mHealth and …, 2023 - mhealth.jmir.org
Background User involvement is increasingly acknowledged as a central part of health care
innovation. However, meaningful user involvement during the development and testing of …

Embedding patient and public involvement: managing tacit and explicit expectations

F Poland, G Charlesworth, P Leung… - Health Expectations, 2019 - Wiley Online Library
Background Evidencing well‐planned and implemented patient and public involvement
(PPI) in a research project is increasingly required in funding bids and dissemination …

Management of fraudulent participants in online research: Practical recommendations from a randomized controlled feasibility trial

MR Davies, D Monssen, H Sharpe… - … Journal of Eating …, 2023 - Wiley Online Library
Objective Fraudulent participation is an escalating concern for online clinical trials and
research studies and can have a significant negative impact on findings. We aim to shed …