Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children's Involvement and …

V Gale, J Carlton - The Patient-Patient-Centered Outcomes Research, 2023 - Springer
Background Qualitative research during the development/testing of Patient Reported
Outcome Measures (PROMs) is recommended to support content validity. However, it is …

Moral distress measurement in animal care workers: a systematic review

Y Baysal, N Goy, S Hartnack, IG Canu - BMJ open, 2024 - bmjopen.bmj.com
Objectives The mental health of veterinary and other animal health professionals is
significantly impacted by the psychological stressors they encounter, such as euthanasia …

Development and psychometric testing of a pediatric chronic graft-versus-host disease symptom scale: protocol for a two-phase, mixed methods study

SA Mitchell, R Hunter, A Fry, SZ Pavletic… - Frontiers in …, 2024 - frontiersin.org
Background Chronic graft-versus-host disease (cGVHD) is a debilitating late complication of
hematopoietic stem cell transplantation. It is often accompanied by extensive symptom …

Consensus framework for conducting phase I/II clinical trials for children, adolescents, and young adults with pediatric low-grade glioma: Guidelines established by the …

S Mueller, J Fangusaro, AO Thomas… - Neuro …, 2024 - academic.oup.com
Within the last few decades, we have witnessed tremendous advancements in the study of
pediatric low-grade gliomas (pLGG), leading to a much-improved understanding of their …

Integration of Daily Patient-Reported Outcome Measures in Pediatric Stem Cell Transplantation

B Hetzer, A Meryk, G Kropshofer, C Salvador… - … and Cellular Therapy, 2023 - Elsevier
Patients' reports of their health status are increasingly used in hematopoietic stem cell
transplantation (SCT) to better understand the negative impact on symptom burden and …

Patient-reported outcomes for quality of care among pediatric patients

M Sakuma, T Morimoto - … Journal for Quality in Health Care, 2023 - academic.oup.com
Patient-reported outcomes (PROs) are self-report instruments that directly measure patients'
perceptions of the impact of disease and treatment. They are both indicators of clinical …

Rasch analysis of a patient-reported outcome measure for self-perceived health among psychiatric patients in Denmark

JB Valentin, J Mainz, SP Johnsen… - BMJ Open …, 2024 - bmjopenquality.bmj.com
Background Patient-reported outcome measures (PROMs) are valuable and necessary tools
for establishing and maintaining patient-centred healthcare. The PRO-Psychiatry initiative …

Early Palliative Care Introduction in Pediatric Neuro-Oncology Patients (RP202)

G Daniels, R Tefera, I Martinez, S Buckingham… - Journal of Pain and …, 2024 - Elsevier
Outcomes 1. Utilizing patient and provider interview data, participants will self-report the
ability to advocate for early introduction of pediatric palliative care in the treatment of neuro …

Doing Instead, Flexing to Accommodate, and Guarding the Future: Quality of Life During Childhood Cancer Treatment (RP201)

A Merz, KE Brock, SE Stevens, AC Revette… - Journal of Pain and …, 2024 - jpsmjournal.com
Outcomes 1. After engaging with the research presentation, participants will apply and
further refine the concepts of" doing instead,"" flexing to accommodate," and" imagined …

A RESEARCH STUDY ON PSYCHOSOMATIC ADAPTATION OF CHILDREN HAVING CANCER

FA Shaukat, M Mursaleen, MSBF Awan… - …, 2023 - search.proquest.com
Cancer is a severe condition that may be particularly distressing for young individuals
receiving treatment. A meta-analysis was conducted to see if there are any differences in …