Focus group methodology generates distinct ethical challenges that do not correspond fully
to those raised by one-to-one interviews. This paper explores, in both conceptual and …

Introduction The death of a baby is devastating for parents, families and staff involved.
Involving bereaved parents in their baby's care and in the maternity hospital perinatal death …

Background Studies exploring the impact of receiving end-of-life prognoses in patients with
advanced cancer use a variety of different measures to evaluate the outcomes, and thus …

Background Worldwide, two million babies are stillborn and 1.8 million babies die before
completing seven days of life. Approximately 4% of pregnant women in Uganda experience …

Objective This study explored the care experiences of parents whose pregnancy was
diagnosed with a fatal fetal anomaly following the legalisation of termination of pregnancy in …

Fathers' lived experience of bereavement is not well understood. This article presents
findings from a Heidegerrian phenomenological study, which aimed to describe fathers' …

Background Although the rate of survival in childhood cancer today is close to 85%, a
cancer diagnosis can still turn the world upside down for both children and parents. Often …

Background Recruiting a diverse group of parents who are grieving the loss of a child into
research is challenging. Social media users represent all demographic groups in the United …

Background Working with bereaved parents in co-designed stillbirth research, policy and
practice is essential to improving care and outcomes. Problem Effective parent engagement …

Abstract Background The McGill Quality of Life Questionnaire-Expanded (MQOL-E) and the
Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are …