Measuring prognostic awareness in patients with advanced cancer: a scoping review and interpretive synthesis of the impact of hope

J Mathews, S Merchant, J Galica… - JNCI: Journal of the …, 2024 - academic.oup.com
Background Assessment of prognostic awareness (PA) in patients with advanced cancer is
challenging because patient responses often indicate their hopes. The objectives of this …

The associations between prognostic awareness and health-related quality of life among patients with advanced cancer: a systematic review

S Ng, S Ozdemir - Palliative medicine, 2023 - journals.sagepub.com
Background: Prognostic awareness among patients with advanced cancer is important for
better palliative and end-of-life care. However, the relationships between prognostic …

Quality of life, psychological distress, and prognostic perceptions in caregivers of patients with multiple myeloma

EK O'Donnell, YN Shapiro, AJ Yee, O Nadeem… - Blood …, 2022 - ashpublications.org
Although caregivers of patients with multiple myeloma (MM) play a critical role in supporting
their loved ones throughout the illness course, studies examining caregiver quality of life …

Coping with glioblastoma: prognostic communication and prognostic understanding among patients with recurrent glioblastoma, caregivers, and oncologists

LE Walsh, LC Polacek, K Panageas, A Reiner… - Journal of neuro …, 2022 - Springer
Purpose Glioblastoma (GBM) is a devastating neuro-oncologic disease with invariably poor
prognosis. Despite this, research shows patients have unrealistic perceptions of their …

Triadic agreement about advanced cancer treatment decisions: perceptions among patients, families, and oncologists

JA Tulsky, KE Steinhauser, TW LeBlanc… - Patient education and …, 2022 - Elsevier
Objectives When patients make cancer treatment decisions, they consider the needs and
preferences of family caregivers and clinicians. We examined how much all three triad …

Latino advanced cancer patients' prognostic awareness and familial cultural influences on advance care planning engagement: a qualitative study

N Torres Blasco, L Rosario… - Palliative Care and …, 2023 - journals.sagepub.com
Background: Advanced cancer patients need an accurate understanding of their prognoses
in order to engage in informed end-of-life care treatment decision-making. Latino cancer …

Prognostication in brain tumors

A Pace, A Tanzilli, D Benincasa - Handbook of Clinical Neurology, 2022 - Elsevier
Despite the use of aggressive multimodality therapies, the prognosis of brain tumor patients
remains poor. Tumors of glial origin typically have the worst prognosis, with a predicted …

Development of a patient decision aid to support shared decision making for patients with recurrent high-grade glioma

H Sorensen von Essen, FR Poulsen… - International Journal of …, 2022 - mdpi.com
When high-grade gliomas recur, patients, their families, and clinicians face difficult medical
decisions. There is no curable treatment, and the treatment options all come with a risk of …

Cross-sectional survey of patients, caregivers, and physicians on diagnosis and treatment of brain metastases

AE Kim, GM Wang, KA Waite, S Elder… - Neuro-Oncology …, 2021 - academic.oup.com
Background The development of brain metastases (BM) is one of the most feared
complications of cancer due to the substantial neurocognitive morbidity and a grim …

[HTML][HTML] An examination of patients and caregivers on Reddit navigating brain Cancer: content analysis of the brain tumor Subreddit

SD Tripathi, PD Parker, AV Prabhu, K Thomas… - JMIR cancer, 2022 - cancer.jmir.org
Background: Occurring in up to 40% of all patients with cancer, the incidence of brain tumors
has caused limited survival, a high psychosocial burden, and an increase in the loss of …