Purpose: To inform the field of rehabilitation psychology about the sociocultural implications
of the term “disability,” and explain the rationale behind the# SaytheWord movement, a …

Complex care in the arena of child health is a growing phenomenon. Although considerable
research is taking place, there remains limited understanding and agreement on the concept …

The informal family caregiver burden (IFCB) for chronically ill bedridden elderly patients
(CIBEPs) is a major issue worldwide. It is a significant challenge due to the ongoing …

With improvements in neonatal and paediatric care, more children living with complex care
needs are surviving beyond infancy into late childhood and adulthood than in the past. We …

Background: The greater proportion of children with a life-limiting condition (LLC) and their
families want to remain at home as much as possible. Building capability in paediatric …

Background Conflict in paediatric healthcare is becoming increasingly prevalent, in
particular relation to paediatric end of life. This is damaging to patients, families …

Children with intellectual disabilities (ID) or autism spectrum disorder (ASD) are considered
unable to grieve or understand the concept of death and might not receive grief support after …

It has only been four years since the Journal of Applied Research in Intellectual Disabilities
(JARID) last published a special issue on Death and Dying, edited by Stuart Todd, Jane …

Purpose This study aimed to determine the palliative care difficulties experienced by nursing
students during their clinical practice. Design and Methods This descriptive and cross …

This study explored parents' experiences of services for children with life-limiting
neurodevelopmental disabilities (LLNDD) using mixed methods. The study included a …