What are the psycho-social and information needs of adolescents and young adults cancer care consumers with intellectual disability? A systematic review of …

E Ni She, FEJ McDonald, L Mimmo, XS Ross… - Children, 2021 - mdpi.com
People with intellectual disability have unmet health needs and experience health
inequalities. There is limited literature regarding cancer care for children, adolescents, and …

Caring for a child with a life limiting condition: The experiences of nurses in an intellectual disability service provider

EO Connor, Y Corcoran - Journal of Intellectual Disabilities, 2022 - journals.sagepub.com
This study elicited the experiences of nurses caring for children with life-limiting conditions
and their family, within a community based intellectual disability service. A qualitative …

How Can Social Work Practice Facilitate a Dignified Dying Experience for People With Intellectual Disabilities? A Scoping Review

K Irons - Australian Social Work, 2023 - Taylor & Francis
Due to improvements in healthcare and the standard of living advancing, the life expectancy
of people with intellectual disabilities (ID) has increased, with a greater number of people …

An Open Exploration Around End-of-Life Journeys for Children Facing Terminal Illness/Severe Disability

C Ellison, CC Van Duivenbode… - … of Children's Rights …, 2023 - taylorfrancis.com
The social context around a child's end of life (EOL) impacts on their experiences of dying as
well as the experience of those around them. Children living with disability are often …

Paediatric Palliative Care National Action Plan Project: Background Literature Review

S Ekberg, A Bowers, N Bradford, K Ekberg, M Rolfe… - 2021 - eprints.qut.edu.au
The development of a paediatric palliative care workforce, models of care, and research
evidence has advanced rapidly in recent decades. This provides a solid foundation for …

Psychosocial Support Around Death, Dying, and Grief for Children with Intellectual Disabilities in Pediatric Palliative Care: An Empirical Study

M Bonin - 2023 - diva-portal.org
Many children with life-limiting health conditions in pediatric palliative care have cognitive
impairments or intellectual disabilities (ID). They are confronted with their own death and …

The impact of MYT1L-syndrome on behaviour and cognition

L Stokes - 2023 - etheses.whiterose.ac.uk
This thesis aimed to investigate the cognitive and behavioural phenotype of MYT1L-
syndrome (2p25. 3 deletion), a novel cause of intellectual disability. Initially, a systematic …

Nursing and Ethics

HY Sarı - iupress.istanbul.edu.tr
Negative attitudes and lack of knowledge towards individuals with special needs are the
biggest obstacles to the right approach in individual relationships or public spaces. Negative …

Hemşirelik ve Etik

IU PRESS - iupress.istanbul.edu.tr
Afetler fiziksel, psikolojik, ruhsal, çevresel, sosyal ve ekonomik sorunlara neden olan, ulusal
veya uluslararası düzeyde yardım talebi gerektiren ani gelişen beklenmedik olaylardır …

Analysis of Usability Aspects in the Disability Work Center Application (GO-DISWORK)

DA Dermawan, F Nugroho - International Joint Conference on …, 2021 - atlantis-press.com
Abstract Information less than optimal in cyberspace is the leading cause of people with
disabilities not getting jobs. The shortcomings of persons with disabilities are also the cause …