The sharing of genomic data holds great promise in advancing precision medicine and
providing personalized treatments and other types of interventions. However, these …

Indigenous scholars are leading initiatives to improve access to genetic and genomic
research and health care based on their unique cultural contexts and within sovereign …

Background Research reporting guidelines are increasingly commonplace and shown to
improve the quality of published health research and health outcomes. Despite severe …

Data have become the new global currency, and a powerful force in making decisions and
wielding power. As the world engages with open data, big data reuse, and data linkage …

Finalist for the 2020 C. Wright Mills Award from the Society for the Study of Social Problems
Since time before memory, large numbers of salmon have made their way up and down the …

Despite widespread support from policy makers, funding agencies, and scientific journals,
academic researchers rarely make their research data available to others. At the same time …

Indigenous communities have long experienced exploitation by researchers and
increasingly require participatory and decolonizing research processes. We present a case …

Health research has relied on ethical principles, such as those of the Belmont Report, to
protect the rights and well-being of research participants. Community-based participatory …

Studies investigating data sharing from a world perspective are seemingly rare. By
employing a quantitative design, this systematic review investigates and presents a …

Background: Indigenous American communities face disproportionate health burdens and
environmental health risks compared with the average North American population. These …