Promoting improved family caregiver health literacy: evaluation of caregiver communication resources

E Wittenberg, J Goldsmith, B Ferrell… - Psycho …, 2017 - Wiley Online Library
Objectives Family caregivers of cancer patients have a vital role in facilitating and sharing
information about cancer, revealing a need to develop caregiver health literacy skills to …

Carer experience supporting someone with dementia and cancer: a narrative approach

G Witham, C Haigh, D Mitchell… - Qualitative Health …, 2018 - journals.sagepub.com
In this article, we examine the challenges of informal carers supporting someone with
dementia and cancer within the United Kingdom. Interviews were conducted with seven …

Development of a conceptual model of cancer caregiver health literacy

EYN Yuen, S Dodson, RW Batterham… - European journal of …, 2016 - Wiley Online Library
Caregivers play a vital role in caring for people diagnosed with cancer. However, little is
understood about caregivers' capacity to find, understand, appraise and use information to …

The unmet supportive care needs of long‐term head and neck cancer caregivers in the extended survivorship period

M Balfe, K O'Brien, A Timmons, P Butow… - Journal of Clinical …, 2016 - Wiley Online Library
Aims and objectives To examine the unmet supportive care needs of long‐term head and
neck cancer caregivers, and the factors associated with those needs. Background Research …

Health literacy, eHealth literacy and their association with burden, distress, and self-efficacy among cancer caregivers

C Moore, P Gallagher, S Dunne - Frontiers in Psychology, 2024 - frontiersin.org
Purpose Health literacy skills are vital for cancer caregivers in helping cancer survivors to
navigate their diagnosis, treatment, and recovery but little is known. This study explored …

Cancer caregivers' prognostic and end-of-life communication needs and experiences and their impact

ATHR Fenton, KM Fletcher, D Kizildag… - Journal of pain and …, 2023 - Elsevier
Context Family caregivers of patients with advanced cancer are integrally involved in
communications regarding prognosis and end-of-life (EOL) planning and care. Yet little …

Partner involvement in treatment-related decision making in triadic clinical consultations–A systematic review of qualitative and quantitative studies

M Bracher, S Stewart, C Reidy, C Allen… - Patient Education and …, 2020 - Elsevier
Objective Explore how partners are involved in treatment-related decision-making within
triadic clinical encounters. Methods Studies were identified via database searches and …

“It's important to me”: A qualitative analysis on shared decision‐making and patient preferences in older adults with early‐stage breast cancer

VM Lawhon, RE England, AS Wallace… - Psycho …, 2021 - Wiley Online Library
Objective Shared decision‐making (SDM) occurs when physicians and patients jointly select
treatment that aligns with patient care goals. Incorporating patient preferences into the …

Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care

A Hogden, D Greenfield, P Nugus… - Health …, 2015 - Wiley Online Library
Background Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for
symptom management and quality of life. Models of decision making in chronic disease and …

Dealing with family conflicts in decision-making in end-of-life care of advanced cancer patients

K Laryionava, EC Winkler - Current Oncology Reports, 2021 - Springer
Abstract Purpose of Review The family plays a significant role in end-of-life care and
decision-making with advanced cancer patients. This non-systematic review aims to …