Cultural and religious considerations in pediatric palliative care
L Wiener, DG McConnell, L Latella… - Palliative & supportive …, 2013 - cambridge.org
Objective: A growing multicultural society presents healthcare providers with a difficult task
of providing appropriate care for individuals who have different life experiences, beliefs …
of providing appropriate care for individuals who have different life experiences, beliefs …
The benefits and burdens of pediatric palliative care and end-of-life research: a systematic review
MS Weaver, K Mooney-Doyle, KP Kelly… - Journal of palliative …, 2019 - liebertpub.com
Objective: The aim of this study is to report the benefits and burdens of palliative research
participation on children, siblings, parents, clinicians, and researchers. Background …
participation on children, siblings, parents, clinicians, and researchers. Background …
“Trying to be a good parent” as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children
PS Hinds, LL Oakes, J Hicks, B Powell… - Journal of Clinical …, 2009 - ascopubs.org
Purpose When a child's cancer progresses beyond current treatment capability, the parents
are likely to participate in noncurative treatment decision making. One factor that helps …
are likely to participate in noncurative treatment decision making. One factor that helps …
[HTML][HTML] Cuidados paliativos: a comunicação como estratégia de cuidado para o paciente em fase terminal
CG Andrade, SFG Costa, MEL Lopes - Ciência & Saúde Coletiva, 2013 - SciELO Brasil
Os cuidados paliativos compreendem uma abordagem de assistência ao paciente sem
possibilidades de cura e sua família, com o objetivo de proporcionar-lhes uma melhor …
possibilidades de cura e sua família, com o objetivo de proporcionar-lhes uma melhor …
[HTML][HTML] Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study
LM Verberne, MC Kars… - European journal of …, 2017 - Springer
In paediatric palliative care (PPC), parents are confronted with increasing caregiving
demands. More children are cared for at home, and the need for PPC of children is …
demands. More children are cared for at home, and the need for PPC of children is …
Chemotherapy versus supportive care alone in pediatric palliative care for cancer: comparing the preferences of parents and health care professionals
D Tomlinson, U Bartels, J Gammon, PS Hinds, J Volpe… - Cmaj, 2011 - Can Med Assoc
Background: The choice between palliative chemotherapy (defined as the use of cytotoxic
medications delivered intravenously for the purpose of our study) and supportive care alone …
medications delivered intravenously for the purpose of our study) and supportive care alone …
[HTML][HTML] The importance of communication in pediatric oncology palliative care: focus on Humanistic Nursing Theory
JRFS França, SFG Costa, MEL Lopes… - … latino-americana de …, 2013 - SciELO Brasil
OBJECTIVE: to investigate and analyze communication in palliative care contexts from the
perspective of nurses, based on Humanistic Nursing Theory. METHOD: this is a field study …
perspective of nurses, based on Humanistic Nursing Theory. METHOD: this is a field study …
Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination
Most parents of children with cancer have dual primary goals: a primary cancer-directed
goal of cure and a primary comfort-related goal of lessening suffering. Early introduction of …
goal of cure and a primary comfort-related goal of lessening suffering. Early introduction of …
Current understanding of decision-making in adolescents with cancer: a narrative systematic review
E Day, L Jones, R Langner… - Palliative …, 2016 - journals.sagepub.com
Background: Policy guidance and bioethical literature urge the involvement of adolescents
in decisions about their healthcare. It is uncertain how roles and expectations of …
in decisions about their healthcare. It is uncertain how roles and expectations of …
Parental involvement in paediatric cancer treatment decisions
K McKenna, J Collier, M Hewitt… - European journal of …, 2010 - Wiley Online Library
McKENNA K., COLLIER J., HEWITT M. & BLAKE H.(2010) European Journal of Cancer
Care19, 621–630 Parental involvement in paediatric cancer treatment decisions This study …
Care19, 621–630 Parental involvement in paediatric cancer treatment decisions This study …