Advances and challenges in European paediatric palliative care
Advances in both public health and medical interventions have resulted in a reduction in
childhood mortality worldwide over the last few decades; however, children still have life …
childhood mortality worldwide over the last few decades; however, children still have life …
The physical health of caregivers of children with life-limiting conditions: a systematic review
J Hartley, M Bluebond-Langner, B Candy… - …, 2021 - publications.aap.org
The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic
Review | Pediatrics | American Academy of Pediatrics Skip to Main Content Disclaimer » …
Review | Pediatrics | American Academy of Pediatrics Skip to Main Content Disclaimer » …
A Qualitative analysis of the experiences of young patients and caregivers confronting pediatric and adolescent oncology diagnosis
I Testoni, AE Nicoletti, M Moscato… - International Journal of …, 2023 - mdpi.com
Epidemiological studies show that new cases of young oncology patients are increasing by
400,000 every year. Psychological literature has shown that receiving an oncological …
400,000 every year. Psychological literature has shown that receiving an oncological …
Decision-making in childhood cancer: parents' and adolescents' views and perceptions
Purpose Few studies have addressed the way in which families of children with cancer
make treatment decisions, and how we can meet parents' and young peoples' decisional …
make treatment decisions, and how we can meet parents' and young peoples' decisional …
[HTML][HTML] Challenges and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network …
Context To dramatically advance the evidence base for pediatric palliative care (PPC)
interventions, practices, and programs in the US and similar practice settings, the field needs …
interventions, practices, and programs in the US and similar practice settings, the field needs …
Interdependent functions of communication with adolescents and young adults in oncology
Background Communication is central to patient‐centered care in adolescent and young
adult (AYA) cancer. Previously, we developed a functional communication model from …
adult (AYA) cancer. Previously, we developed a functional communication model from …
Supporting family decision-making for a child who is seriously ill: creating synchrony and connection
VN Madrigal, KP Kelly - Pediatrics, 2018 - publications.aap.org
The families of children with chronic or serious illness are sometimes faced with difficult
decisions never previously imagined. We offer a stepwise approach in building a human …
decisions never previously imagined. We offer a stepwise approach in building a human …
Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence
Y Zhong, A Cavolo, V Labarque, C Gastmans - BMC Palliative Care, 2022 - Springer
Background With paediatric patients, deciding whether to withhold/withdraw life-sustaining
treatments (LST) at the end of life is difficult and ethically sensitive. Little is understood about …
treatments (LST) at the end of life is difficult and ethically sensitive. Little is understood about …
Co‐management of communication and care in adolescent and young adult oncology
Background Clinicians have an ethical and practical imperative to engage adolescents and
young adults (AYAs) with cancer in communication and care. Many young AYAs have …
young adults (AYAs) with cancer in communication and care. Many young AYAs have …
What adolescents living with long-term conditions say about being involved in decision-making about their healthcare: a systematic review and narrative synthesis of …
A Jordan, F Wood, A Edwards, V Shepherd… - Patient education and …, 2018 - Elsevier
Objective To understand the preferences and experiences of adolescents (age 10–19) with
long-term conditions (LTCs) towards involvement in discussions and decisions regarding …
long-term conditions (LTCs) towards involvement in discussions and decisions regarding …