Support for mothers, fathers and families after perinatal death

L Koopmans, T Wilson, J Cacciatore… - Cochrane database of …, 2013 - cochranelibrary.com
Background Provision of an empathetic, sensitive, caring environment and strategies to
support mothers, fathers and their families experiencing perinatal death are now an …

Pediatric palliative care in infants and neonates

BS Carter - Children, 2018 - mdpi.com
The application of palliative and hospice care to newborns in the neonatal intensive care
unit (NICU) has been evident for over 30 years. This article addresses the history, current …

[PDF][PDF] Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers

World Health Organization - 2018 - apps.who.int
People younger than 20 years comprise 35% of the global population and 40% of the global
population of least-developed nations (1). The number of children–neonates, infants …

Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study

S Payne, A Harding, T Williams, J Ling… - Palliative …, 2022 - journals.sagepub.com
Background: In 2009, the EAPC published recommendations on standards and norms for
palliative care in Europe, and a decade later, wished to update them to reflect contemporary …

Guidance for pediatric end-of-life care

JS Linebarger, V Johnson, RD Boss - Pediatrics, 2022 - publications.aap.org
Background Some pediatric deaths happen within minutes to days of the cause (eg,
unintentional injury, extremely preterm birth, catastrophic illness). Others occur days to years …

State of the science on perinatal palliative care

C Wool - Journal of Obstetric, Gynecologic & Neonatal Nursing, 2013 - Elsevier
Objective To report the state of the science since 1995 on the concept of palliative care for
parents who opt to continue a pregnancy after receiving a life‐limiting fetal diagnosis. Data …

Neonatal palliative care

E Parravicini - Current opinion in pediatrics, 2017 - journals.lww.com
NPC is a unique multidisciplinary approach for the care of newborns affected by life-limiting
or complex medical conditions with uncertain prognosis. Standardized guidelines should be …

Neonatal pain management

BS Carter, J Brunkhorst - Seminars in perinatology, 2017 - Elsevier
Pain management in the neonatal ICU remains challenging for many clinicians and in many
complex care circumstances. The authors review general pain management principles and …

Perinatal palliative care birth planning as advance care planning

DME Cortezzo, K Ellis, A Schlegel - Frontiers in Pediatrics, 2020 - frontiersin.org
Purpose of Review: A significant number of pregnancies are complicated by a fetus with a
life-limiting diagnosis. As diagnoses are made earlier in the pregnancy, families experience …

When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care

K Zimmermann, E Bergstraesser, S Engberg… - BMC palliative …, 2016 - Springer
Background Parents facing the death of their child have a strong need for compassionate
professional support. Care services should be based on empirical evidence, be sensitive to …