Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles

JK Burton, AT Wolters, AM Towers, L Jones… - The Lancet Healthy …, 2022 - thelancet.com
Reforms to social care in response to the COVID-19 pandemic, in the UK and internationally,
place data at the heart of proposed innovations and solutions. The principles are not well …

[HTML][HTML] Decision support tools in adult long-term care facilities: scoping review

L Lapp, K Egan, L McCann, M Mackenzie… - Journal of medical …, 2022 - jmir.org
Background Digital innovations are yet to make real impacts in the care home sector despite
the considerable potential of digital health approaches to help with continued staff shortages …

Measuring quality of life in care homes when self-report is challenging: the construct validity, structural characteristics and internal consistency of the mixed-methods …

AM Towers, S Rand, G Collins, N Smith… - Age and …, 2023 - academic.oup.com
Introduction The adult social care outcomes toolkit (ASCOT) measures social care-related
quality of life (SCRQoL) using self-completion questionnaires and interviews. Many care …

Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study

AM Towers, A Gordon, AT Wolters, S Allan, S Rand… - BMJ open, 2023 - bmjopen.bmj.com
Introduction Health and care data are routinely collected about care home residents in
England, yet there is no way to collate these data to inform benchmarking and improvement …

From Warkworth House to the 21st century care homes: progress marked by persistent challenges

AL Gordon, K Spilsbury, WP Achterberg… - Age and …, 2022 - academic.oup.com
Long-term care homes play an essential role within health and social care. Successful
measures to support older people at home for longer have led to increased prevalence of …

[HTML][HTML] The Use of Person-Centered Outcome Measures to Support Integrated Palliative Care for Older People: A Systematic Review

L Chen, KE Sleeman, A Bradshaw… - Journal of the American …, 2024 - Elsevier
Objectives The aim was to synthesize evidence on the use of person-centered outcome
measures to facilitate integrated palliative care for older people and build a logic model …

Piloting a minimum data set for older people living in care homes in England: a developmental study

AL Gordon, S Rand, E Crellin, S Allan, F Tracey… - medRxiv, 2024 - medrxiv.org
Background We developed a prototype minimum data set (MDS) for English care homes,
assessing feasibility of extracting data directly from digital care records (DCRs) with linkage …

Data collection in care homes for older adults: A national survey in England

B Hanratty, A Wolters, AM Towers… - Journal of Long …, 2023 - researchprofiles.herts.ac.uk
Context: In many countries, there is a specification for information that should be collected by
care homes. So-called 'minimum data-sets'(MDS) are often lengthy, and report on resident …

Cross-sectional study assessing the feasibility of measuring residents' Quality of Life in English care homes and assessing the construct validity and internal …

AM Towers, S Rand, S Allan, L Webster, S Palmer… - medRxiv, 2024 - medrxiv.org
Objectives To assess the feasibility of capturing older care home residents' quality of life
(QoL) in digital social care records (DSCRs) and the construct validity (hypothesis testing) …

Researchers' experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design

C Surr, L Marsden, A Griffiths, S Cox, J Fossey… - Plos one, 2024 - journals.plos.org
Background Two accepted designs exist for parallel-group cluster-randomised trials (CRTs).
Closed-cohort designs follow the same individuals over time with a single recruitment period …