Despite the growing demand for research that engages stakeholders, there is limited
evidence in the literature to demonstrate its value–or return on investment. This gap …

Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …

ABSTRACT BACKGROUND Patients and healthcare stakeholders are increasingly
becoming engaged in the planning and conduct of biomedical research. However, limited …

Aims: Stakeholder engagement is fundamental to comparative effectiveness research
(CER), but lacks consistent terminology. This paper aims to define stakeholder engagement …

Background Patient and public involvement (PPI) is advocated in clinical trials yet evidence
on how to optimise its impact is limited. We explored researchers' and PPI contributors' …

The willingness of people to participate in populationbased studies has been declining for
decades and is likely to continue to do so. 1, 2 Recently, large-scale cohort studies even had …

Multiple gene therapy trials are occurring for a variety of ophthalmic diseases around the
world. The safety of gene therapy in the eye has been established, and the next step is to …

Background Patient and public involvement (PPI) is increasingly recognized as bringing a
range of benefits to clinical and health services research. Recent systematic reviews have …

Background: Stakeholder involvement in health care research has been shown to improve
research development, processes, and dissemination. The literature is developing on …

Introduction The attitude towards patient involvement in clinical research has changed
dramatically over the years, from research about patient to research with patients. This …