Community monitoring of natural resource systems and the environment

F Danielsen, H Eicken, M Funder… - Annual Review of …, 2022 - annualreviews.org
Community monitoring can track environmental phenomena, resource use, and natural
resource management processes of concern to community members. It can also contribute …

Ethics review of big data research: What should stay and what should be reformed?

A Ferretti, M Ienca, M Sheehan, A Blasimme… - BMC medical …, 2021 - Springer
Background Ethics review is the process of assessing the ethics of research involving
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …

The limitations of user-and human-centered design in an eHealth context and how to move beyond them

L van Velsen, G Ludden, C Grünloh - Journal of Medical Internet …, 2022 - jmir.org
Human-centered design (HCD) is widely regarded as the best design approach for creating
eHealth innovations that align with end users' needs, wishes, and context and has the …

Contours of citizen science: a vignette study

M Haklay, D Fraisl… - Royal Society …, 2021 - royalsocietypublishing.org
Citizen science has expanded rapidly over the past decades. Yet, defining citizen science
and its boundaries remained a challenge, and this is reflected in the literature—for example …

[PDF][PDF] Participants in citizen science

A Land-Zandstra, G Agnello, YS Gültekin… - The science of citizen …, 2021 - library.oapen.org
The most important factor that defines citizen science is that non-professional scientists
contribute to scientific research. Therefore, it is important to recognise the perspectives and …

[PDF][PDF] Citizen social science: New and established approaches to participation in social research

A Albert, B Balázs, E Butkevičienė… - … 7. In: Vohland K. et al …, 2021 - library.oapen.org
This chapter explores the ways in which the roles of citizens and researchers play out in the
social sciences. This is expressed by numerous overlapping and related terms, such as co …

A scoping review of citizen science approaches in chronic disease prevention

L Marks, Y Laird, H Trevena, BJ Smith… - Frontiers in Public …, 2022 - frontiersin.org
Background Citizen science approaches, which involve members of the public as active
collaborators in scientific research, are increasingly being recognized for their potential …

[HTML][HTML] Fair and equitable AI in biomedical research and healthcare: Social science perspectives

R Baumgartner, P Arora, C Bath, D Burljaev… - Artificial Intelligence in …, 2023 - Elsevier
Artificial intelligence (AI) offers opportunities but also challenges for biomedical research
and healthcare. This position paper shares the results of the international conference “Fair …

Ethics framework for citizen science and public and patient participation in research

B Groot, T Abma - BMC Medical Ethics, 2022 - Springer
Background Citizen science and models for public participation in health research share
normative ideals of participation, inclusion, and public and patient engagement. Academic …

An open innovation approach to co-produce scientific knowledge: an examination of citizen science in the healthcare ecosystem

MV Ciasullo, M Carli, WM Lim… - European Journal of …, 2022 - emerald.com
Purpose The article applies the citizen science phenomenon–ie lay people involvement in
research endeavours aimed at pushing forward scientific knowledge–to healthcare …