The debate over return of individual research results and incidental findings to study
participants is a key frontier in research ethics and practice. This is fundamentally a problem …

There are an increasing number of population studies collecting data and samples to
illuminate gene-environment contributions to disease risk and health. The rising affordability …

Sudden cardiac arrest (SCA) accounts for half of all cardiac deaths in Europe. In recent
years, large-scale SCA registries have been set up to enable observational studies into risk …

The majority of biobank policies and consent forms do not address post-mortem use of data
for medical research, thus causing uncertainty after research participants' death. This …

Globally active companies are involved in the discursive construction of moral legitimacy.
Establishing normative conformance is problematic given the plurality of norms and values …

Background Consent for data research in acute and critical care is complex as patients
become at least temporarily incapacitated or die. Existing guidelines and regulations in the …

Whether or not to offer individual genetic results to research participants has been the
subject of considerable debate, yet consensus regarding what, when, and how to return …

In this article, we use the theory of Information Ethics to argue that deceased people have a
prima facie moral right to privacy in the context of health data research, and that this should …

The study of human anatomy has long been inseparable from illustration, as the portrayal of
the dissected body alongside a descriptive text supports the understanding of this complex …

Using genetic tests on deceased patients' samples for diagnostic purposes affects the family
members' health and lives but raises some ethical issues in today's practice of medicine and …