The flow of research data concerning the genetic basis of health and disease is rapidly
increasing in speed and complexity. In response, many projects are seeking to ensure that …

Not all blockchains are created equal, and many cannot accommodate all of the primary
characteristics of big data: Variety, Velocity, Volume and Veracity. Currently, public …

Genetic testing is traditionally preceded by counselling to discuss its advantages and
disadvantages with individuals so they can make informed decisions. The new technique of …

Shared decision making (SDM)-involving patients in decisions relevant to their health-has
been increasingly influential in medical thought and practice around the world. This paper …

Background Sequencing of the human genome and the subsequent analyses have
produced immense volumes of data. The technological advances have opened new …

自1997 年正式實施以來, 臺灣的醫藥分業始終處於動盪與停滯不前的狀態.
在為改善藥品管制環境的背景下, 臺灣政府引進了被多數西方國家所採用的醫藥分業作為手段 …

What about policy regarding SDM? Though informed consent and patients' right to
information are regulated by Israeli law, there is a low level of formal activities focused on …

This article presents findings from a large quantitative-based study conducted in Israel in
eight genetic clinics across the country regarding patients' attitudes to disclosure of genetic …

Genetic testing of children is the subject of ethical and legal debate. On the one hand, the
literature emphasises the personal interests and rights of the individual child. On the other …

Leading research projects are evidence of the growing public interest in genetic diagnosis
and treatment. In this context, disclosure of genetic information to relatives has become a …