[HTML][HTML] Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review
PS Vig, JY Lim, RWL Lee, H Huang, XH Tan, WQ Lim… - BMC palliative …, 2021 - Springer
Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …
these effects extending beyond emotional, physical morbidity and compromising self …
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review
FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …
the individual needs of a heterogenous population of children and their parent caregivers …
Association between children with life-threatening conditions and their parents' and siblings' mental and physical health
Importance Despite concerns regarding the potential deleterious physical and mental health
outcomes among family members of a child with a life-threatening condition (LTC), few …
outcomes among family members of a child with a life-threatening condition (LTC), few …
[HTML][HTML] Challenges and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network …
Context To dramatically advance the evidence base for pediatric palliative care (PPC)
interventions, practices, and programs in the US and similar practice settings, the field needs …
interventions, practices, and programs in the US and similar practice settings, the field needs …
[HTML][HTML] Decision-making at the limit of viability: differing perceptions and opinions between neonatal physicians and nurses
HU Bucher, SD Klein, MJ Hendriks, R Baumann-Hölzle… - BMC pediatrics, 2018 - Springer
Background In the last 20 years, the chances for intact survival for extremely preterm infants
have increased in high income countries. Decisions about withholding or withdrawing …
have increased in high income countries. Decisions about withholding or withdrawing …
[HTML][HTML] Ethics of end of life decisions in pediatrics: a narrative review of the roles of caregivers, shared decision-making, and patient centered values
JD Santoro, M Bennett - Behavioral Sciences, 2018 - mdpi.com
Background: This manuscript reviews unique aspects of end of life decision-making in
pediatrics. Methods: A narrative literature review of pediatric end of life issues was …
pediatrics. Methods: A narrative literature review of pediatric end of life issues was …
[HTML][HTML] Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement …
A Bronsema, T Theißen, K Oechsle, J Wikert… - BMC palliative …, 2022 - Springer
Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …
services among parents of children who had received specialist paediatric palliative care, as …
[HTML][HTML] Bereaved parents' perspectives on their child's end-of-life care: connecting a self-report questionnaire and interview data from the nationwide Paediatric End …
K Zimmermann, K Marfurt-Russenberger… - BMC Palliative Care, 2022 - Springer
Abstract Background Paediatric Palliative Care (PPC) focuses on ensuring the best possible
quality of life for the child and his/her family by extending beyond the physical domain into …
quality of life for the child and his/her family by extending beyond the physical domain into …
Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: a qualitative interview study
S Ribbers, J Wager, A Hartenstein-Pinter… - Palliative …, 2020 - journals.sagepub.com
Background: The interest in outcome measurement in pediatric palliative care is rising. To
date, the majority of studies investigating relevant outcomes of pediatric palliative care focus …
date, the majority of studies investigating relevant outcomes of pediatric palliative care focus …
Supporting family decision-making for a child who is seriously ill: creating synchrony and connection
VN Madrigal, KP Kelly - Pediatrics, 2018 - publications.aap.org
The families of children with chronic or serious illness are sometimes faced with difficult
decisions never previously imagined. We offer a stepwise approach in building a human …
decisions never previously imagined. We offer a stepwise approach in building a human …