2| THE NEW AND CHANGING LANDSCAPE OF CHILDREN

AEB Emerges - Interdisciplinary Pediatric Palliative Care, 2022 - books.google.com
In the late 1970s, when a child was born with hypoplastic left heart syndrome, which is a
fatal congenital cardiac condition, the babies would be born, they would be OK for a few …

[PDF][PDF] Att vara förälder till nyfödda barn i behov av palliativ vård:-En litteraturöversikt

F Nyholm, M Rödin - 2022 - diva-portal.org
Bakgrund: Vid neonatalvårdsavdelningen vårdas bland annat barn som föds förtidigt eller
som drabbas av komplikationer under eller efter förlossningen. Palliativ vård av nyfödda …

Familien pädiatrischer Palliativpatienten

B Gertz, B Zernikow, A Beissenhirtz… - Pädiatrische …, 2021 - Springer
Familien mit lebenslimitiert erkrankten Kindern stehen vor mannigfaltigen
Herausforderungen. Neben der ständigen Sorge um ihr krankes Kind müssen sie sich mit …

Children's palliative care: parent and professional perspectives of unmet needs, access and expectations

G Constantinou - 2022 - uobrep.openrepository.com
Understanding the needs of children and their families for children's palliative care remains
a top research priority internationally. The presented PhD thesis contributes to this gap in …

End-of-life decision-making in the neonatal intensive care unit

A Riverola de Veciana - Frontiers in Pediatrics, 2023 - europepmc.org
Most paediatric deaths occur in the neonatal period, many of them in neonatal intensive care
units after withdrawal of life support or the decision not to initiate new treatments. In these …

[PDF][PDF] “The world is losing this little girl”: An exploration of hospital-based Children's End of Life Care through a Narrative Lens

AM Jones - 2021 - tara.tcd.ie
The death of a child is a profound and life-changing loss for all families. The majority of
children continue to die in hospital due to the nature of the child's illness, the suddenness of …

[PDF][PDF] Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping

PS Vig, JY Lim, RWL Lee, H Huang, XH Tan… - 2021 - bmcpalliatcare.biomedcentral.com
Background: Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

[HTML][HTML] Föräldrars upplevelser av den pediatriska palliativa vården

L Algesjö, A Bydén - 2021 - diva-portal.org
Bakgrund: Den pediatriska palliativa vården syftar till vård av barn i livets slutskede.
Sjuksköterskan har här en viktig roll i att bedriva en personcentrerad vård gentemot barnen …

[PDF][PDF] La gestione delle emozioni degli infermieri, che lavorano in un contesto di cure domiciliari pediatriche, confrontati con il bambino e la sua famiglia in un …

E Grossi - 2019 - tesi.supsi.ch
BACKGROUND Le Life Skills sono delle abilità che permettono all'uomo di relazionarsi con
il mondo esterno. L'OMS suddivide tali strategie in diverse categorie e una di essa è la …

[HTML][HTML] Palliative care in children with advanced heart disease in a tertiary care environment: a mini review

E Bergsträsser, S Lukose, K Zimmermann… - Frontiers in …, 2022 - frontiersin.org
Palliative care for children continues to evolve. More recently, this has also been true in the
field of pediatric cardiology, particularly for children with advanced heart disease. In these …