Advancing genomics to improve health equity

EB Madden, LA Hindorff, VL Bonham, TH Akintobi… - Nature …, 2024 - nature.com
Health equity is the state in which everyone has fair and just opportunities to attain their
highest level of health. The field of human genomics has fallen short in increasing health …

Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive …

EJ White, MJ Demuth, A Wiglesworth… - …, 2023 - nature.com
Abstract American Indian and Alaska Native (AIAN) populations have suffered a history of
exploitation and abuse within the context of mental health research and related fields. This …

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

SR Carroll, R Plevel, LL Jennings, I Garba… - Frontiers in …, 2022 - frontiersin.org
Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …

Indigenous Peoples and research: self-determination in research governance

I Garba, R Sterling, R Plevel, W Carson… - Frontiers in Research …, 2023 - frontiersin.org
Indigenous Peoples are reimagining their relationship with research and researchers
through greater self-determination and involvement in research governance. The emerging …

Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review

TA Brockman, O Shaw, L Wiepert… - Journal of Clinical and …, 2023 - cambridge.org
Residents of rural areas are underrepresented in research. The aim of this narrative review
was to explore studies describing the effectiveness of community engagement strategies …

Researching with American Indian and Alaska native communities: Pursuing partnerships for psychological inquiry in service to Indigenous futurity.

JP Gone - 2023 - psycnet.apa.org
This chapter reviews issues, approaches, and strategies for psychology research with
contemporary American Indians and Alaska Natives (AIANs) communities whose" …

Considering “Respect for Sovereignty” beyond the Belmont report and the common rule: ethical and legal implications for American Indian and Alaska native peoples

KS Tsosie, KG Claw, NA Garrison - The American Journal of …, 2021 - Taylor & Francis
Neufeld, SD, J. Chapman, N. Crier, S. Marsh, J. McLeod, and LA Deane. 2019. Research
101: A process for developing local guidelines for ethical research in heavily researched …

A roadmap for social determinants of health and biological nursing research in the National Institute of Nursing Research 2022–2026 Strategic Plan: Optimizing health …

JY Taylor, V Barcelona, C Magny-Normilus, ML Wright… - Nursing Outlook, 2023 - Elsevier
Background Health equity is essential for improving the well-being of all individuals and
groups, and research remains a critical element for understanding barriers to health equity …

The CPT1A Arctic variant: perspectives of community members and providers in two Alaska tribal health settings

JA Beans, SB Trinidad, AL Shane, KA Wark… - Journal of Community …, 2023 - Springer
Newborn screening in Alaska includes screening for carnitine palmitoyltransferase 1A
(CPT1A) deficiency. The CPT1A Arctic variant is a variant highly prevalent among …

Beyond the Belmont report

W Siddiqui, RR Sharp - The American Journal of Bioethics, 2021 - Taylor & Francis
For decades, the Belmont Report—and the associated regulatory framework it inspired—has
been a cornerstone in the ethical conduct of research involving human subjects. Despite its …