Brain banking in low and middle-income countries: raison d'être for the Ibadan brain ageing, dementia and neurodegeneration (IBADAN) brain bank project
Brain banks are biorepositories of central nervous system (CNS) tissue including fixed and
frozen whole brains, brain biopsies and spinal cord, as well as body fluids comprising the …
frozen whole brains, brain biopsies and spinal cord, as well as body fluids comprising the …
Biobanking in a challenging African environment: Unique experience from the SIREN project
RO Akinyemi, K Akinwande, S Diala… - Biopreservation and …, 2018 - liebertpub.com
Africa was previously insufficiently represented in the emerging discipline of biobanking
despite commendable early efforts. However, with the Human, Heredity, and Health in Africa …
despite commendable early efforts. However, with the Human, Heredity, and Health in Africa …
Multiple modes of data sharing can facilitate secondary use of sensitive health data for research
T Tamuhla, ET Lulamba, T Mutemaringa, N Tiffin - BMJ Global Health, 2023 - gh.bmj.com
Evidence-based healthcare relies on health data from diverse sources to inform decision-
making across different domains, including disease prevention, aetiology, diagnostics …
making across different domains, including disease prevention, aetiology, diagnostics …
Related stakeholders' perspectives on sociocultural considerations in biobanking practice in South Africa
Background: Biobanking practice continues to proliferate in South Africa, yet little is known
about how stakeholders engage with social, cultural, and religious considerations in this …
about how stakeholders engage with social, cultural, and religious considerations in this …
Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative …
N Sylvia, O Joseph, KM David, M Ian… - Research …, 2022 - journals.sagepub.com
This study aimed to explore experiences and practices of key research team members in
obtaining informed consent for pharmacogenetics research and to identify the approaches …
obtaining informed consent for pharmacogenetics research and to identify the approaches …
Protection of Personal Information Act 2013 and data protection for health research in South Africa
C Staunton, R Adams, D Anderson… - … Data Privacy Law, 2020 - academic.oup.com
Abstract The Protection of Personal Information Act (POPIA)[No. 4 of 2013] is the first
comprehensive data protection regulation to be passed in South Africa and it gives effect to …
comprehensive data protection regulation to be passed in South Africa and it gives effect to …
Unraveling the ethical, legal, and social implications of neurobiobanking and stroke genomic research in Africa: a Study Protocol of the African Neurobiobank for …
The ethical, legal, and social implications (ELSI) of emerging neurobiobanks and data
resources are unclear in an African scientific landscape with unique cultural, linguistic, and …
resources are unclear in an African scientific landscape with unique cultural, linguistic, and …
Online Training as a Means to Improve the Understanding of Ethical, Legal, and Social Aspects of Biobanking Research: Stakeholder Perspectives from South Africa
Introduction: The proliferation of biobanking activities demand a review of current training
opportunities for service providers and researchers, specifically related to the ethical, legal …
opportunities for service providers and researchers, specifically related to the ethical, legal …
Blueprint for building a biorepository in a resource-limited setting that follows international best practices
PJ Ozumba, S Peters, T Croxton, T Anazodo… - African Journal of …, 2019 - journals.co.za
Background: Genetic diversity is abundant on the African continent. However, genomic
research has been hampered by a lack of high quality and extensively annotated …
research has been hampered by a lack of high quality and extensively annotated …
H3Africa partnerships to empower clinical research sites to generate high-quality biological samples
E Onyemata, M Owolabi, B Ovbiagele… - African Journal of …, 2020 - journals.co.za
Background: The Institute of Human Virology Nigeria (IHVN)–Human Heredity and Health in
Africa (H3Africa) Biorepository (I-HAB) seeks to provide high-quality biospecimens for …
Africa (H3Africa) Biorepository (I-HAB) seeks to provide high-quality biospecimens for …