Brain banks are biorepositories of central nervous system (CNS) tissue including fixed and
frozen whole brains, brain biopsies and spinal cord, as well as body fluids comprising the …

Africa was previously insufficiently represented in the emerging discipline of biobanking
despite commendable early efforts. However, with the Human, Heredity, and Health in Africa …

Evidence-based healthcare relies on health data from diverse sources to inform decision-
making across different domains, including disease prevention, aetiology, diagnostics …

Background: Biobanking practice continues to proliferate in South Africa, yet little is known
about how stakeholders engage with social, cultural, and religious considerations in this …

This study aimed to explore experiences and practices of key research team members in
obtaining informed consent for pharmacogenetics research and to identify the approaches …

Abstract The Protection of Personal Information Act (POPIA)[No. 4 of 2013] is the first
comprehensive data protection regulation to be passed in South Africa and it gives effect to …

The ethical, legal, and social implications (ELSI) of emerging neurobiobanks and data
resources are unclear in an African scientific landscape with unique cultural, linguistic, and …

Introduction: The proliferation of biobanking activities demand a review of current training
opportunities for service providers and researchers, specifically related to the ethical, legal …

Background: Genetic diversity is abundant on the African continent. However, genomic
research has been hampered by a lack of high quality and extensively annotated …

Background: The Institute of Human Virology Nigeria (IHVN)–Human Heredity and Health in
Africa (H3Africa) Biorepository (I-HAB) seeks to provide high-quality biospecimens for …