Palliative care for children

Committee on Bioethics and Committee on Hospital … - …, 2000 - publications.aap.org
This statement presents an integrated model for providing palliative care for children living
with a life-threatening or terminal condition. Advice on the development of a palliative care …

Incorporating palliative care into primary care education

SD Block, GM Bernier, LVM Crawley, S Farber… - Journal of general …, 1998 - Springer
The confluence of enhanced attention to primary care and palliative care education presents
educators with an opportunity to improve both (as well as patient care) through integrated …

Sclerosing epithelioid fibrosarcoma: case presentation and a systematic review

C Ossendorf, GM Studer, B Bode… - … and Related Research®, 2008 - journals.lww.com
In sclerosing epithelioid fibrosarcoma (SEF), a rare variant of low-grade fibrosarcoma,
treatment results and therapeutic options are poorly characterized. We systematically …

Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults

S Zadeh, L Wiener - Palliative & supportive care, 2015 - cambridge.org
Objective: Each year, more than 11,000 adolescents and young adults (AYAs), aged 15–34,
die from cancer and other life-threatening conditions. In order to facilitate the transition from …

“Face-to-face with it”: medical students' narratives about their end-of-life education

D Wear - Academic Medicine, 2002 - journals.lww.com
“Face-to-face with It”: Medical Students' Narratives about T... : Academic Medicine “Face-to-face
with It”: Medical Students' Narratives about Their End-of-life Education : Academic Medicine …

[HTML][HTML] When silence is not golden: engaging adolescents and young adults in discussions around end-of-life care choices

L Wiener, S Zadeh, LH Wexler - Pediatric blood & cancer, 2013 - ncbi.nlm.nih.gov
Managing end-of-life care (EoL) is always emotionally taxing. Honest discussions about
prognosis and EoL decision-making are often delayed due to questions about the legal …

Teaching and learning end-of-life care: evaluation of a faculty development program in palliative care

AM Sullivan, MD Lakoma, JA Billings… - Academic …, 2005 - journals.lww.com
Purpose To evaluate the effectiveness of the Program in Palliative Care Education and
Practice (PCEP), an intensive faculty development program at Harvard Medical School …

Teaching end-of-life issues in US medical schools: 1975 to 2005

GE Dickinson - American Journal of Hospice and Palliative …, 2006 - journals.sagepub.com
This study examined medical school offerings on end-of-life issues between 1975 and 2005.
Seven national surveys of US medical schools were conducted in 1975, 1980, 1985, 1990 …

Faculty development in end-of-life care: evaluation of a national train-the-trainer program

GA Stratos, S Katz, MR Bergen… - Academic Medicine, 2006 - journals.lww.com
To address serious deficiencies in physician training in end-of-life care, the authors
developed and disseminated a faculty development curriculum. The overall goals of this …

Advance care planning in adolescents with cystic fibrosis: A quality improvement project

TM Kazmerski, DJ Weiner, J Matisko… - Pediatric …, 2016 - Wiley Online Library
Introduction Advance care planning (ACP), though recommended, has not been studied in
adolescents with cystic fibrosis (CF). This quality improvement project engaged adolescents …