Background and objectives Decisional regret is common in bereaved parents. We aimed to
identify factors associated with and to explain patterns of parental decisional regret. Methods …

Perinatal palliative care has grown out of both an historical necessity in attending to babies
in the NICU that face difficult odds of survival, the increasing technology that may avail life …

An increasing number of children are living for months and years with enduring medical
conditions that have substantial impact on their functioning and longevity. Several definitions …

Purpose Parents' perceptions of their child's suffering affect their bereavement experience.
Identifying factors that shape parental perceptions of suffering could help build effective …

Children with heart disease often experience symptoms and medically intense end-of-life
care. Our study explored bereaved parents' perceptions of a “good death” via a mail survey …

In this paper I aim to show why pediatric suffering must be understood as a judgment or
evaluation, rather than a mental state. To accomplish this task, first I analyze the various …

Introduction Advances in medical technology have led to both clinical and philosophical
challenges in defining death. Highly publicized cases have occurred when families or …

Despite the central place of suffering in medical care, suffering in infants and nonverbal
children remains poorly defined. There are epistemic problems in the detection and …

Pediatric palliative care (PPC) aims to enhance an individual's quality of life by decreasing
suffering and supporting patients and families as they continually reestablish goals of care in …

Context Parents of children who die in the pediatric intensive care unit (PICU) carry
memories of their child's suffering throughout a lifelong grieving experience. Given their …