Ethical challenges in nephrology: a call for action

DE Martin, DCH Harris, V Jha, L Segantini… - Nature Reviews …, 2020 - nature.com
Abstract The American Society of Nephrology, the European Renal Association–European
Dialysis and Transplant Association and the International Society of Nephrology Joint …

Ignorance, information and autonomy

J Harris, K Keywood - Theoretical medicine and bioethics, 2001 - Springer
People have a powerful interest in geneticprivacy and its associated claim to ignorance, and
some equally powerful desires to beshielded from disturbing information are oftenvoiced …

Gouvernementalität und Biopolitik

T Lemke - 2007 - philpapers.org
Abstract» Vergesst Foucault!«–so lautete die provokante Aufforderung Jean Baudrillards
Ende der 1970er Jahre. Ein Vierteljahrhundert später ist die sozialwissenschaftliche …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

[图书][B] Medical ethics today: the BMA's handbook of ethics and law

British Medical Association - 2012 - books.google.com
This is your source for authoritative and comprehensive guidance from the British Medical
Association (BMA) Medical Ethics Department covering both routine and highly contentious …

[PDF][PDF] Principles of genetic counseling in the era of next-generation sequencing

M Yang, JW Kim - Annals of laboratory medicine, 2018 - synapse.koreamed.org
Traditional genetic counseling has focused on the target gene and its natural progress with
respect to disease risk. Next-generation sequencing (NGS) can produce information on …

Epigenetics and personalized medicine: prospects and ethical issues

R Chadwick, AO 'Connor - Personalized Medicine, 2013 - Taylor & Francis
As scientific knowledge about gene–environment interactions and the role of epigenetic
factors in gene expression grows, new possibilities for personalized medicine may be …

[图书][B] This Is Bioethics: An introduction

RF Chadwick, U Schüklenk - 2020 - books.google.com
Should editing the human genome be allowed? What are the ethical implications of social
restrictions during a pandemic? Is it ethical to use animals in clinical research? Is prioritizing …

The power of knowledge ethical, legal and technological aspects of data mining and group profiling in epidemiology

B Custers - Custers BHM (2004), The Power of Knowledge: Ethical …, 2004 - papers.ssrn.com
With the rise of information and communication technologies, large amounts of data are
being generated and stored in databases. In order to get a better grip on these large …

[图书][B] Genetic testing: accounts of autonomy, responsibility and blame

M Arribas-Ayllon, S Sarangi, A Clarke - 2013 - taylorfrancis.com
Advances in molecular genetics have led to the increasing availability of genetic testing for a
variety of inherited disorders. While this new knowledge presents many obvious health …