Background Parents commonly use the internet to search for information about their child's
health-related symptoms and guide parental health-related decisions. Despite the impact of …

Background Parents are increasingly using social media to inform health decisions for their
children. Objective This scoping review examines 1) How do parents use social media to …

Introduction Patients are increasingly accessing online health information and have become
more participatory in their engagement with the advent of social media (SM). This study …

To evaluate the quality, reliability, and popularity of YouTube videos addressing strabismus.
This is a retrospective, cross-sectional, register-based study. A search was performed using …

The social sciences are becoming datafied. The questions once considered the domain of
sociologists are now answered by data scientists operating on large datasets and breaking …

Objective 1) To evaluate differences in how parents use the Internet and social media for
health information by child age. 2) To examine parental perceptions of health information on …

Background: Loneliness, social isolation, and feeling disconnected from society are
commonly experienced by parents of children with rare diseases and are, among others …

Objectives Rare diseases are characterised by low incidence, often with little evidence for
effective treatments. Isolated patients and specialist centres for rare diseases are …

Background Social media provides a potential avenue for genetic counselors to address
gaps in access to reliable genetics information for rare disease communities. However, only …

ObjectivesCaregivers of children with medical complexity (CMC) face decisions about life-
sustaining interventions, such as tracheostomy. Our objective is to describe the support …