[HTML][HTML] Perinatal palliative care in sub-Saharan Africa: recommendations for practice, future research, and guideline development

M Abayneh, S Rent, PO Ubuane, BS Carter… - Frontiers in …, 2023 - frontiersin.org
Worldwide, sub-Saharan Africa has the highest burden of global neonatal mortality (43%)
and neonatal mortality rate (NMR): 27 deaths per 1,000 live births. The WHO recognizes …

Characterizing the language used to discuss death in family meetings for critically ill infants

MH Barlet, MC Barks, PA Ubel, JK Davis… - JAMA network …, 2022 - jamanetwork.com
Importance Communication during conversations about death is critical; however, little is
known about the language clinicians and families use to discuss death. Objective To …

The case for advance care planning in the NICU

M Lin, S Sayeed, DD DeCourcey, J Wolfe… - …, 2022 - publications.aap.org
Many NICUs have reached an inflection point where infant deaths following limitation of life-
sustaining treatments outnumber those following unsuccessful resuscitations, and many …

Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers

A Levine, PA Winn, AH Fogel, E Lelkes… - Journal of Palliative …, 2023 - liebertpub.com
Objective: Barriers to palliative care for children with serious illness include system
constraints and vastly different training and attitudes toward palliative care. This study aimed …

Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit

M Lin, D Williams, G Vitcov, S Sayeed… - American Journal of …, 2024 - thieme-connect.com
Objective Our objective was to evaluate the preferences and experiences of bereaved
parents around advance care planning (ACP) in the neonatal intensive care unit (NICU) …

813 Use of simulation teaching including simulated patient death to teach palliative care skills

N Taylor, H Chamberlain, M Hills - 2023 - adc.bmj.com
Objectives Death in childhood is uncommon. There is little formal training for healthcare
professionals in managing paediatric death. 1–3 Formal training can improve palliative care …

Bariéry při poskytování paliativní péče v neonatologii pohledem sester.

M Kachlová, R Bužgová - Pediatrie pro praxi, 2023 - search.ebscohost.com
The topic of palliative care in neonatology has been very topical recently, and proper
implementation in practice requires a mul tidisciplinary effort, with nurses being an essential …

69 Inviting quiet voices into NICE severe complex needs (NG 213) benchmarking–what do we miss if we don't?

S Rekret, V Campbell - 2023 - adc.bmj.com
Objective Hypothesis–all members of a service, including those not always thought of as in
the multidisciplinary team (MDT), will have helpful views about how NICE standards are met …

[PDF][PDF] Improving knowledge of ReSPECT through paediatric palliative care focused simulation-based teaching

N Taylor, A Thorpe, R Smith, D Box, M Hills - resus.org.uk
Background: Despite widespread use of simulation teaching in education (1) use remains
limited in paediatric palliative care (PPC). However, formal PPC training including simulation …

[PDF][PDF] Companioning Families Of Children With Severe Neurological Impairment: Opportunities To Teach Pediatric Trainees Grief-Informed Care

A Porter, S Segal, JF Bogetz - Pediatric E-Journal - nhpco.org
Background Among families of children with severe neurological impairment (SNI), grief
begins long before the end of life. 1 With static or progressive central nervous system …