Patient and public engagement in integrated knowledge translation research: are we there yet?
Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …
are developed and delivered. Despite this, we know that there are many gaps and …
Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
Background With the sharp increase in the involvement of patients (including family and
informal caregivers) as active participants, collaborators, advisors and decision-makers in …
informal caregivers) as active participants, collaborators, advisors and decision-makers in …
Clarifying the degrees, modes, and muddles of “meaningful” patient engagement in health services planning and designing
U Majid, A Gagliardi - Patient Education and Counseling, 2019 - Elsevier
Objectives Patient engagement has become the expectation around the world in an array of
healthcare activities. There is an emerging need to improve the mechanisms and …
healthcare activities. There is an emerging need to improve the mechanisms and …
Health technology assessment 2025 and beyond: lifecycle approaches to promote engagement and efficiency in health technology assessment
R Trowman, A Migliore, DA Ollendorf - International Journal of …, 2023 - cambridge.org
Lifecycle considerations have always been part of health technology assessment (HTA).
However, the concept of taking a fuller, more holistic “lifecycle approach” is gaining interest …
However, the concept of taking a fuller, more holistic “lifecycle approach” is gaining interest …
Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the …
Research on patient and public involvement so far concentrates on defining involvement,
describing its methods, and analyzing involvement practices in various individual research …
describing its methods, and analyzing involvement practices in various individual research …
Patient advocates and researchers as partners in cancer research: A winning combination
LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international
funding agencies. The role of advocates has expanded in recent years to include all areas of …
funding agencies. The role of advocates has expanded in recent years to include all areas of …
Patient-centric culture and implications for patient engagement during the COVID-19 pandemic
U Majid, A Wasim - Patient Experience Journal, 2020 - pxjournal.org
Some consider patient engagement as the “holy grail” of healthcare because of its potential
to revolutionize how we view and address health system problems. Multiple efforts around …
to revolutionize how we view and address health system problems. Multiple efforts around …
Co‐construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement
MP Pomey, P Brouillard, I Ganache… - Health …, 2020 - Wiley Online Library
Abstract Context The National Institute of Excellence in Health and Social Services
(INESSS), which functions as the Québec health technology assessment (HTA) agency …
(INESSS), which functions as the Québec health technology assessment (HTA) agency …
[HTML][HTML] Are we making a difference? A qualitative study of patient engagement at the pan-Canadian oncology drug review: Perspectives of patient groups
RE Mercer, A Chambers, H Mai, V McDonald… - Value in Health, 2020 - Elsevier
Objectives Despite wide support for patient involvement in health technology assessments
(HTA), determining meaningful engagement is complex. This article explores experiences …
(HTA), determining meaningful engagement is complex. This article explores experiences …
Public engagement in health technology assessment in Brazil: the case of the Trastuzumab public consultation
Background Public engagement in health technology assessment (HTA) is increasing
worldwide. There are several forms of public engagement and it is not always possible to …
worldwide. There are several forms of public engagement and it is not always possible to …