Patient and public engagement in integrated knowledge translation research: are we there yet?

D Banner, M Bains, S Carroll, DK Kandola… - Research involvement …, 2019 - Springer
Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …

Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis

M Vanstone, C Canfield, C Evans, M Leslie… - Health Research Policy …, 2023 - Springer
Background With the sharp increase in the involvement of patients (including family and
informal caregivers) as active participants, collaborators, advisors and decision-makers in …

Clarifying the degrees, modes, and muddles of “meaningful” patient engagement in health services planning and designing

U Majid, A Gagliardi - Patient Education and Counseling, 2019 - Elsevier
Objectives Patient engagement has become the expectation around the world in an array of
healthcare activities. There is an emerging need to improve the mechanisms and …

Health technology assessment 2025 and beyond: lifecycle approaches to promote engagement and efficiency in health technology assessment

R Trowman, A Migliore, DA Ollendorf - International Journal of …, 2023 - cambridge.org
Lifecycle considerations have always been part of health technology assessment (HTA).
However, the concept of taking a fuller, more holistic “lifecycle approach” is gaining interest …

Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the …

J Lander, H Langhof, ML Dierks - PloS one, 2019 - journals.plos.org
Research on patient and public involvement so far concentrates on defining involvement,
describing its methods, and analyzing involvement practices in various individual research …

Patient advocates and researchers as partners in cancer research: A winning combination

LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international
funding agencies. The role of advocates has expanded in recent years to include all areas of …

Patient-centric culture and implications for patient engagement during the COVID-19 pandemic

U Majid, A Wasim - Patient Experience Journal, 2020 - pxjournal.org
Some consider patient engagement as the “holy grail” of healthcare because of its potential
to revolutionize how we view and address health system problems. Multiple efforts around …

Co‐construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement

MP Pomey, P Brouillard, I Ganache… - Health …, 2020 - Wiley Online Library
Abstract Context The National Institute of Excellence in Health and Social Services
(INESSS), which functions as the Québec health technology assessment (HTA) agency …

[HTML][HTML] Are we making a difference? A qualitative study of patient engagement at the pan-Canadian oncology drug review: Perspectives of patient groups

RE Mercer, A Chambers, H Mai, V McDonald… - Value in Health, 2020 - Elsevier
Objectives Despite wide support for patient involvement in health technology assessments
(HTA), determining meaningful engagement is complex. This article explores experiences …

Public engagement in health technology assessment in Brazil: the case of the Trastuzumab public consultation

VKS Carvalho, MSA de Sousa, JOM Barreto… - BMC health services …, 2019 - Springer
Background Public engagement in health technology assessment (HTA) is increasing
worldwide. There are several forms of public engagement and it is not always possible to …