If genomic studies are to be a clinically relevant and timely reflection of the relationship
between genetics and health status—whether for common or rare variants—cost-effective …

Medical research is increasingly becoming data-intensive; sensitive data are being re-used,
linked and analysed on an unprecedented scale. The current EU data protection law reform …

The PubMLST. org website hosts a collection of open-access, curated databases that
integrate population sequence data with provenance and phenotype information for over …

The development of biomedical science requires the creation of biological material
collections that allow for the search and discovery of biomarkers for pathological conditions …

Method We searched the Web of Science and PubMed databases to find studies addressing
ethical problems in biobanks with no limits set (study design, study population, time period …

There is a growing international agreement on the need to provide greater access to
research data and bio-specimen collections to optimize their long-term value and exploit …

Open access to research data is increasingly being institutionalized across funding and
research-related organizations through data sharing policies. Compliance with these …

Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …

Documenting genome diversity is important for the local biomedical communities and
instrumental in developing precision and personalized medicine. Currently, tens of …

The goal of clinical proteomics is to identify, quantify, and characterize proteins in body fluids
or tissue to assist diagnosis, prognosis, and treatment of patients. In this way, it is similar to …