Integration of genomic technology into healthcare settings establishes new capabilities to
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …

Indigenous scholars are leading initiatives to improve access to genetic and genomic
research and health care based on their unique cultural contexts and within sovereign …

The field of genomics has benefited greatly from its “openness” approach to data sharing.
However, with the increasing volume of sequence information being created and stored and …

After the atomic bombing at the end of World War II, anxieties about survival in the nuclear
age led scientists to begin stockpiling and freezing hundreds of thousands of blood samples …

As genomic science has evolved, so have policy and practice debates about how to
describe and evaluate the ways in which genomic information is treated for individuals …

As genomic researchers are encouraged to engage in broad genomic data sharing,
American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions …

Background Privacy-related concerns can prevent equitable participation in health research
by US Indigenous communities. However, studies focused on these communities' views …

Emerging technologies for analyzing biospecimens have led to advances in understanding
the interacting role of genetics and environment on development and individual responsivity …

Background This paper describes the design, implementation, and process outcomes from
three public deliberations held in three tribal communities. Although increasingly used …

PURPOSE This investigation was undertaken to define the barriers to Indigenous peoples
participating in biobanking and genomic research. METHODS A literature review was …