Abstract Introduction/Aims Health communication is central to effective, supportive
amyotrophic lateral sclerosis (ALS) clinical care. Guidance for ALS communication is limited …

Background Motor neuron disease (MND) is a fatal, progressive neurodegenerative disease
that causes progressive weakening and wasting of limb, bulbar, thoracic and abdominal …

Purpose Current research suggests that feeling a lack of control is common among people
living with Motor Neurone Disease (plwMND). This systematic review explores and …

BackgroundFamily carers of people living with motor neurone disease (MND) face
continuous changes and losses during the progression of the disease, impacting on their …

Objective: This systematic review will evaluate the experience of hope in adult patients with
advanced chronic diseases other than cancer, transitioning toward end-of-life. The review …

Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Objective We urgently need to develop and evaluate more psychological interventions to
support people with Motor Neurone Disease (MND) and caregivers. We used the person …

Objective Expert consensus guidelines recommend referral of people with amyotrophic
lateral sclerosis (ALS) to ALS health charities for support. Limited research indicates that …

Objective To investigate the effect of carer-and disease-related factors on anticipatory grief
(AG) in family carers supporting people living with Motor Neurone Disease. Methods …

Acceptance of roles in the care of older adults by a family caregiver depends on factors
emanating from commitment to familial relationships, widespread cultural expectation, and …