Doing focus groups

RS Barbour - 2018 - torrossa.com
Doing Focus Groups by Rosaline Barbour is the fourth volume in The SAGE Qualitative
Research Kit. This book can be used together with the other titles in the Kit as a …

Intellectual disabilities and decision making at end of life: A literature review

A Kirkendall, K Linton, S Farris - Journal of Applied Research in …, 2017 - Wiley Online Library
Background Individuals with an intellectual disability are vulnerable to having end‐of‐life
decisions made for them merely due to the presence of a disability. As a result, decisions …

'Transitions are scary for our kids, and they're scary for us': Family member and youth perspectives on the challenges of transitioning to adulthood with autism

NC Cheak‐Zamora, M Teti, J First - Journal of Applied …, 2015 - Wiley Online Library
Background Adolescents with autism spectrum disorder (ASD) face many challenges as
they age into adulthood. Because little is known about the perspectives of caregivers and …

Healthy living according to adults with intellectual disabilities: towards tailoring health promotion initiatives

NMJ Kuijken, J Naaldenberg… - Journal of …, 2016 - Wiley Online Library
Background A healthy lifestyle can prevent several health problems experienced by adults
with intellectual disabilities (ID). For the development of effective and usable health …

Sexual and relationship interest, knowledge, and experiences among adolescents and young adults with autism spectrum disorder

NC Cheak-Zamora, M Teti, A Maurer-Batjer… - Archives of sexual …, 2019 - Springer
Little research exists to describe sexual and romantic relationships among adolescents and
young adults with autism spectrum disorder (ASD) from their perspectives. Sexuality and …

Using photovoice to include people with profound and multiple learning disabilities in inclusive research

V Cluley - British journal of learning disabilities, 2017 - Wiley Online Library
Accessible summary Many researches now include people with learning disabilities, which
is really positive, but people with profound and multiple learning disabilities are often left out …

“You think it's hard now… It gets much harder for our children”: Youth with autism and their caregiver's perspectives of health care transition services

NC Cheak-Zamora, M Teti - Autism, 2015 - journals.sagepub.com
Adolescents with Autism Spectrum Disorder diagnosis often have complex comorbid
physical and mental health conditions. These youth rely heavily on their medical providers …

'I'm sure we made it a better study…': Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study

C Beighton, C Victor, IM Carey… - Journal of …, 2019 - journals.sagepub.com
Patient and public involvement is considered integral to health research in the United
Kingdom; however, studies documenting the involvement of adults with intellectual …

“… but if you're afraid of things, how are you meant to belong?” What belonging means to people with intellectual disabilities?

I Strnadová, K Johnson… - Journal of Applied …, 2018 - Wiley Online Library
Background A policy commitment to social inclusion has brought about some positive
changes in the lives of people with intellectual disabilities; yet many also continue to …

Doing research together: A study on the views of advisors with intellectual disabilities and non‐disabled researchers collaborating in research

C Puyalto, M Pallisera, J Fullana… - Journal of Applied …, 2016 - Wiley Online Library
Background Despite an increase in inclusive studies in recent years, research on the views
of the people with and without disabilities who have participated in these studies is scarce …