Adult care in cystic fibrosis

JS Elborn - Seminars in respiratory and critical care medicine, 2019 - thieme-connect.com
Cystic fibrosis (CF) is now more common in adults than children in countries with well-
developed health care systems. The number of adults continues to increase and will further …

Patient activation and treatment decision-making in the context of cancer: Examining the contribution of informal caregivers' involvement

C Acquati, JH Hibbard, E Miller-Sonet, A Zhang… - Journal of Cancer …, 2021 - Springer
Purpose The present work investigated the relationship between patient activation,
treatment decision-making, and adherence to the prescribed treatment regimen. Given the …

A Systematic Review of the Reliability and Validity of the Patient Activation Measure Tool

QX Ng, MYQ Liau, YY Tan, ASP Tang, C Ong… - Healthcare, 2024 - mdpi.com
Patient activation, broadly defined as the ability of individuals to manage their health and
navigate the healthcare system effectively, is crucial for achieving positive health outcomes …

Adherence to prophylaxis and its association with activation of self‐management and treatment satisfaction

JW Hoefnagels, LH Schrijvers, FWG Leebeek… - …, 2021 - Wiley Online Library
Introduction Prophylactic replacement therapy (prophylaxis) in patients with haemophilia
(PWH) requires lifelong, frequent (self) infusions. Prophylaxis effectiveness depends on …

Digital technology for early identification of exacerbations in people with cystic fibrosis

CH Wong, S Smith, S Kansra - Cochrane Database of …, 2023 - cochranelibrary.com
Background Cystic fibrosis (CF) is a life‐limiting genetic condition affecting various organ
systems including the gastrointestinal tract, endocrine system and especially the respiratory …

Rheumatology patients' perceptions of patient activation and the Patient Activation Measure: a qualitative interview study

B Jones, A Hunt, S Hewlett, D Harcourt… - Musculoskeletal …, 2022 - Wiley Online Library
Introduction An important aspect of self‐management is patient activation (the skills, abilities
and confidence someone uses to actively manage their health). The dominant method of …

[PDF][PDF] Measures of patient activation and self-efficacy

CB Hamilton, LC Li - 2020 - open.library.ubc.ca
1 This is the peer reviewed version of the following article: Hamilton CB, Li LC. Measures of
Patient Activation and Self-Effica Page 1 1 This is the peer reviewed version of the following …

[HTML][HTML] Persons With Chronic Obstructive Pulmonary Disease and High Levels of Activation Improved Their Physical Activity Skills After an Educational Session

MC Fernández-Sánchez, FJ Ruiz-López… - … Diseases: Journal of …, 2024 - ncbi.nlm.nih.gov
Background: Daily physical activity is part of the self-management of patients with chronic
obstructive pulmonary disease (COPD), and didactic information sessions may be …

Using FLO text-messages to enhance health behaviours and self-management of long-term conditions in South-Asian patients

T Chaudhry, P Ormandy, C Vasilica - Digital Health, 2024 - journals.sagepub.com
Objectives Cultural and communication differences faced by South-Asian (SA) ethnic
minority groups have led to challenges in the delivery of health care and complex …

Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis

S Dawson, CJ Girling, L Cowap… - Cochrane Database of …, 2023 - cochranelibrary.com
Background Adherence to treatment, including inhaled therapies, is low in people with cystic
fibrosis (CF). Although psychological interventions for improving adherence to inhaled …