[HTML][HTML] Patients, families, and communities COVID-19 impact assessment: Lessons learned and compelling needs

F Isasi, MD Naylor, D Skorton, DC Grabowski… - NAM …, 2021 - ncbi.nlm.nih.gov
The health system exists to serve the most fundamental need of society: people's health and
well-being. To do so effectively requires engaging people as a partnership proposition in all …

Researching minoritised communities in palliative care: An agenda for change

J Koffman, S Bajwah, JM Davies… - Palliative …, 2023 - journals.sagepub.com
Background: Palliative care access, experiences and outcomes of care disadvantage those
from ethnically diverse, Indigenous, First nation and First people communities. Research into …

Perspectives about racism and patient-clinician communication among Black adults with serious illness

CE Brown, AR Marshall, CR Snyder… - JAMA Network …, 2023 - jamanetwork.com
Importance Black patients with serious illness experience higher-intensity care at the end of
life. Little research has used critical, race-conscious approaches to examine factors …

Racial and ethnic differences in hospice use and hospitalizations at end-of-life among Medicare beneficiaries with dementia

PJ Lin, Y Zhu, N Olchanski, JT Cohen… - JAMA Network …, 2022 - jamanetwork.com
Importance The pool of studies examining ethnic and racial differences in hospice use and
end-of-life hospitalizations among patients with dementia is limited and results are …

Racial/ethnic disparities in nursing home end-of-life care: A systematic review

LV Estrada, M Agarwal, PW Stone - Journal of the American Medical …, 2021 - Elsevier
Objective Health disparities are pervasive in nursing homes (NHs), but disparities in NH end-
of-life (EOL) care (ie, hospital transfers, place of death, hospice use, palliative care, advance …

Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

S Bajwah, J Koffman, J Hussain… - BMJ Supportive & …, 2024 - spcare.bmj.com
Objectives To develop insights into response of palliative care services caring for people
from ethnic minority groups during COVID-19. Methods Cross-sectional online survey of UK …

Clinically informed machine learning elucidates the shape of hospice racial disparities within hospitals

IS Khayal, AJ O'Malley, AE Barnato - NPJ Digital Medicine, 2023 - nature.com
Racial disparities in hospice care are well documented for patients with cancer, but the
existence, direction, and extent of disparity findings are contradictory across the literature …

Trust as a central factor in hospice enrollment disparities among ethnic and racial minority patients: a qualitative study of interrelated and compounding factors …

G Anandarajah, MR Mennillo, S Wang… - Journal of Palliative …, 2023 - liebertpub.com
Background: Disparities in end-of-life (EOL) care remain among ethnic/racial minority
populations. Choosing hospice care in the United States depends on goals-of-care …

End-Of-Life Care In Assisted Living Communities: Race And Ethnicity, Dual Enrollment Status, And State Regulations: Study examines end-of-life care in assisted …

H Temkin-Greener, W Guo, Y Hua, Y Li, T Caprio… - Health …, 2022 - healthaffairs.org
Assisted living communities are the final home for many of their residents, most of whom are
older, frail, and cognitively or functionally impaired. Yet little is known about end-of-life care …

Top ten tips palliative care clinicians should know about delivering antiracist care to Black Americans

KF Jones, E Laury, JJ Sanders, LT Starr… - Journal of Palliative …, 2022 - liebertpub.com
Racial disparities, including decreased hospice utilization, lower quality symptom
management, and poor-quality end-of-life care have been well documented in Black …