A consensus review on the development of palliative care for patients with chronic and progressive neurological disease

DJ Oliver, GD Borasio, A Caraceni… - European journal of …, 2016 - Wiley Online Library
Background and purpose The European Association of Palliative Care Taskforce, in
collaboration with the Scientific Panel on Palliative Care in Neurology of the European …

The experience of Parkinson's disease: a systematic review and meta‐ethnography

A Soundy, B Stubbs, C Roskell - The Scientific World Journal, 2014 - Wiley Online Library
There has been little attempt to summarise and synthesise qualitative studies concerning the
experience and perception of living with Parkinson's disease. Bringing this information …

Palliative care in neurology

MT Robinson, RG Holloway - Mayo clinic proceedings, 2017 - Elsevier
Palliative medicine is a specialty that focuses on improving the quality of life for patients with
serious or advanced medical conditions, and it is appropriate at any stage of disease …

Palliative care and Parkinson's disease: caregiver perspectives

I Boersma, J Jones, C Coughlan, J Carter… - Journal of palliative …, 2017 - liebertpub.com
Abstract Background: Palliative care for Parkinson's disease (PD) is an emerging area of
interest for clinicians, patients and families. Identifying the palliative care needs of caregivers …

Parkinson disease patients' perspectives on palliative care needs: What are they telling us?

I Boersma, J Jones, J Carter, D Bekelman… - Neurology: Clinical …, 2016 - AAN Enterprises
Background: A growing body of literature suggests that patients with Parkinson disease (PD)
have many unmet needs under current models of care that may be addressed through …

Framing advance care planning in Parkinson disease: patient and care partner perspectives

HD Lum, SR Jordan, A Brungardt, R Ayele, M Katz… - Neurology, 2019 - AAN Enterprises
Objective Advance care planning (ACP) is a core quality measure in caring for individuals
with Parkinson disease (PD) and there are no best practice standards for how to incorporate …

Cognitive impairment in Parkinson's disease

J Cosgrove, JE Alty, S Jamieson - Postgraduate medical journal, 2015 - academic.oup.com
Cognitive impairment is a significant non-motor symptom of Parkinson's disease (PD).
Longitudinal cohort studies have demonstrated that approximately 50% of those with PD …

Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: a systematic review

U Akbar, RB McQueen, J Bemski, J Carter… - Journal of Neurology …, 2021 - jnnp.bmj.com
Parkinson's disease and related disorders (PDRD) are the second most common
neurodegenerative disease and a leading cause of death. However, patients with PDRD …

Multidisciplinary care for people with Parkinson's disease: the new kids on the block!

DLM Radder, NM de Vries, NP Riksen… - Expert review of …, 2019 - Taylor & Francis
Introduction: Parkinson's disease (PD) is a chronic multisystem disorder that causes a wide
variety of motor and non-motor symptoms. Over time, the progressive nature of the disease …

Access and attitudes toward palliative care among movement disorders clinicians

JM Miyasaki, SY Lim, KR Chaudhuri… - Movement …, 2022 - Wiley Online Library
Background Neuropalliative care is an emerging field for those with neurodegenerative
illnesses, but access to neuropalliative care remains limited. Objective We sought to …