Mapping the impact of patient and public involvement on health and social care research: a systematic review

JO Brett, S Staniszewska, C Mockford… - Health …, 2014 - Wiley Online Library
Background There is an increasing international interest in patient and public involvement
(PPI) in research, yet relatively little robust evidence exists about its impact on health and …

Conceptualizing inclusive research with people with intellectual disability

C Bigby, P Frawley… - Journal of Applied …, 2014 - Wiley Online Library
Background The inclusion of people with intellectual disability in research is a common
requirement of research funding. Little conceptual clarity is available to guide the conduct of …

[图书][B] World report on disability 2011

World Health Organization - 2011 - apps.who.int
Para atingir as perspectivas melhores e mais duradouras do desenvolvimento que integram
o núcleo das Metas de Desenvolvimento do Milênio de 2015 e ir além, devemos capacitar …

Public involvement at the design stage of primary health research: a narrative review of case examples

J Boote, W Baird, C Beecroft - Health policy, 2010 - Elsevier
OBJECTIVE: To review published examples of public involvement in research design, to
synthesise the contributions made by members of the public, as well as the identified …

What is right? Ethics in intellectual disabilities research

KE McDonald, CA Kidney - Journal of Policy and Practice in …, 2012 - Wiley Online Library
There are important benefits to including adults with intellectual disabilities in research.
Calls for their increased participation in research co‐occur with notable discussion about …

Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and …

J Jivraj, LA Sacrey, A Newton, D Nicholas… - …, 2014 - journals.sagepub.com
Participatory research aims to increase the relevance and broaden the implementation of
health research by involving those affected by the outcomes of health studies. Few studies …

Nothing about us without us: Does action research in developmental disabilities research measure up?

E Stack, KE McDonald - Journal of Policy and practice in …, 2014 - Wiley Online Library
Action research—research collaborations between professional researchers and community
members to address community concerns—has become increasingly popular in …

A good quality of life under the influence of methadone: A qualitative study among opiate-dependent individuals

J De Maeyer, W Vanderplasschen, L Camfield… - International journal of …, 2011 - Elsevier
BACKGROUND: Attention from researchers and health care workers to the quality of life
(QoL) of opiate users is growing, but most studies are quantitative, giving limited attention to …

Research ethics and the use of visual images in research with people with intellectual disability

K Boxall, S Ralph - Journal of Intellectual and Developmental …, 2009 - Taylor & Francis
The aim of this paper is to encourage debate about the use of creative visual approaches in
intellectual disability research and discussion about Internet publication of photographs …

Conducting Research with Individuals Who Have Intellectual Disabilities: Ethical and Practical Implications for Qualitative Research.

KD Coons, SL Watson - Journal on Developmental …, 2013 - search.ebscohost.com
Despite the acknowledgement that individuals with intellectual disabilities are the experts on
their own experiences, these individuals have been largely omitted from the disability …