The ALIGN framework: a parent-informed approach to prognostic communication for infants with neurologic conditions
ME Lemmon, MC Barks, S Bansal, S Bernstein… - Neurology, 2023 - AAN Enterprises
Background and Objectives Clinicians often communicate complex, uncertain, and
distressing information about neurologic prognosis to parents of critically ill infants. Although …
distressing information about neurologic prognosis to parents of critically ill infants. Although …
What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals
B Goni-Fuste, D Pergolizzi… - Palliative …, 2023 - journals.sagepub.com
Background: The palliative care initial encounter can have a positive impact on the quality of
life of patients and family carers if it proves to be a meaningful experience. A better …
life of patients and family carers if it proves to be a meaningful experience. A better …
[HTML][HTML] Factors that foster therapeutic alliance in pediatric sports and orthopedics: a systematic review
RN Meyers, RB McHugh, AM Conde - International Journal of …, 2022 - mdpi.com
Therapeutic alliance has been defined as building rapport between provider and patient in
order to enhance patient motivation to improve outcomes. The purpose of this systematic …
order to enhance patient motivation to improve outcomes. The purpose of this systematic …
Navigating prognostic communication when children with poor‐prognosis cancer experience prolonged disease stability
AS Porter, E Chow, C Woods… - Pediatric Blood & …, 2023 - Wiley Online Library
Background Most pediatric patients and families want clear prognostic information across
the illness course. Yet when children with poor‐prognosis cancer experience prolonged …
the illness course. Yet when children with poor‐prognosis cancer experience prolonged …
Embracing paediatric palliative care in paediatric oncology from diagnosis onwards
A Lacerda, MA Martínez, B Dumont… - Pediatric Blood & …, 2023 - Wiley Online Library
Paediatric palliative care aims to support children and young people with life‐limiting or life‐
threatening conditions, and their families, from the time of diagnosis. Early integration within …
threatening conditions, and their families, from the time of diagnosis. Early integration within …
Patient, caregiver, and clinician perspectives on core components of therapeutic alliance for adolescents and young adults with advanced cancer: a qualitative study
R Mastropolo, A Altschuler, KE Brock… - JAMA Network …, 2023 - jamanetwork.com
Importance The patient-clinician therapeutic alliance is an important aspect of high-quality
cancer care. However, components of the therapeutic alliance in adolescents and young …
cancer care. However, components of the therapeutic alliance in adolescents and young …
[HTML][HTML] Little patients, big impacts: a narrative review of palliative and emergent radiotherapy for pediatric cancers
SK Schaub, J Oh, AM Menghini… - Annals of Palliative …, 2024 - apm.amegroups.org
Methods: A narrative review was performed querying PubMed, MEDLINE, ClinicalTrials. gov
databases, and supplemented with review articles, survey studies, current and recent …
databases, and supplemented with review articles, survey studies, current and recent …
Mismatch between Pediatric Oncologists' Private and Parent-Facing Prognostic Communication: Communication Patterns Used to Soften Prognostic Disclosure
AS Porter, C Woods, M Stall, JN Baker… - Journal of palliative …, 2023 - liebertpub.com
Purpose: Most parents of children with cancer desire honest prognostic communication, yet
oncologists often avoid clear prognostic disclosure. This study explored differences between …
oncologists often avoid clear prognostic disclosure. This study explored differences between …
A qualitative study of clinicians and parents of children with severe neurological impairment on tools to support family-centered care
H Lewis, A Trowbridge, D Jonas… - Journal of Palliative …, 2022 - liebertpub.com
Background: Children with severe neurological impairment (SNI) have complex conditions
and require family-centered care, yet, this is challenging in the hospital. Objectives: To …
and require family-centered care, yet, this is challenging in the hospital. Objectives: To …
Forming clinician-parent therapeutic alliance for children with severe neurologic impairment
OBJECTIVES Care for children with severe neurologic impairment (SNI) often involves
complex medical decision-making where therapeutic alliance between clinicians and …
complex medical decision-making where therapeutic alliance between clinicians and …