Background While studies have examined the quality of life (QoL) of family caregivers for
people living with dementia, it is not yet clear how these caregivers' quality of life affects their …

Background: Most people with dementia transition into nursing homes as their disease
progresses. Their family caregivers often continue to be involved in their relative's care and …

Dementia is the most common neurologic disease, affecting approximately 55 million people
worldwide. Dementia is a terminal illness, although not always recognized as such. This …

Background End stage dementia is an inevitable phase following a prolonged deterioration.
Family caregivers for people with end stage dementia who live in their home can experience …

In its latest report on palliative care, the health committee of the House of Commons
recorded the Department of Health's admission that the lack of palliative care for patients …

Background Research on the nature of a “good death” has mostly focused on dying with
cancer and other life-limiting diseases, but less so on dementia. Conceptualizing common …

Background Due to increased life expectancy, just as with the general population, people
with intellectual disabilities are experiencing, and dying from, chronic and life‐limiting …

Background Proactive conversations about individual preferences between residents,
relatives, and staff can support person-centred, value-concordant end-of-life (EOL) care …

Background Family caregivers are primarily responsible for the care of older adults with
dementia, and the demands of this care increase as the end of life approaches …

Home hospice units specializing in palliative end-of-life care are uncommon despite the
theoretical benefit for people with end stage dementia (PWESD). We described the …