Barriers to transition from pediatric to adult care: a systematic review

WN Gray, MR Schaefer… - Journal of Pediatric …, 2018 - academic.oup.com
Objective Transition research in each disease group is developing in its own “silo.” A
comprehensive review of barriers to transition within and across chronic illness groups is …

[HTML][HTML] Long-term care of the pediatric kidney transplant recipient

HE Fernandez, BJ Foster - … Journal of the American Society of …, 2022 - journals.lww.com
Pediatric kidney transplant recipients are distinguished from adult recipients by the need for
many decades of graft function, the potential effect of CKD on neurodevelopment, and the …

[PDF][PDF] Long‐term medical management of the pediatric patient after liver transplantation: 2013 practice guideline by the American Association for the Study of Liver …

DA Kelly, JC Bucuvalas, EM Alonso… - Liver …, 2013 - Wiley Online Library
VC 2013 American Association for the Study of Liver Diseases. of the American Association
for the Study of Liver Diseases requires a class (reflecting the benefit versus the risk) and …

Strangers headed to a strange land? A pilot study of using a transition coordinator to improve transfer from pediatric to adult services

RA Annunziato, MC Baisley, N Arrato, C Barton… - The Journal of …, 2013 - Elsevier
Objective To compare the impact of a transition coordinator on outcomes for pediatric liver
transplant recipients vs a historical comparison group. Study design To examine the utility of …

Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies

A Farre, V Wood, JE McDonagh, JR Parr… - Archives of Disease in …, 2016 - adc.bmj.com
Objectives We aimed to (i) explore how health professionals and managers who work with
young people seek to define developmentally appropriate healthcare (DAH),(ii) identify the …

The health care transition of youth with liver disease into the adult health system: position paper from ESPGHAN and EASL

P Vajro, B Fischler, P Burra, D Debray… - Journal of pediatric …, 2018 - journals.lww.com
Background: Medical advances have dramatically improved the long-term prognosis of
children and adolescents with once-fatal hepatobiliary diseases. However, there is no …

Transition needs of parents of adolescents and emerging adults with special health care needs and disabilities

CL Betz, WM Nehring, ML Lobo - Journal of Family Nursing, 2015 - journals.sagepub.com
The period of health care transition (HCT) for adolescents and emerging adults with special
health care needs and disabilities involves a complex realignment of the parent–child …

Developmentally appropriate healthcare for young people: a scoping study

A Farre, V Wood, T Rapley, JR Parr, D Reape… - Archives of disease in …, 2015 - adc.bmj.com
Background There is increasing recognition of the importance of providing quality
healthcare to meet the biopsychosocial needs of young people.'Developmentally …

Transition readiness in pediatric patients with inflammatory bowel disease: patient survey of self‐management skills

EP Whitfield, EM Fredericks, SJ Eder… - Journal of Pediatric …, 2015 - Wiley Online Library
Objective: Transition may be associated with poor health outcomes, but limited data exist
regarding inflammatory bowel disease (IBD). Acquisition of self‐management skills is …

[PDF][PDF] National survey of adult transplant hepatologists on the pediatric‐to‐adult care transition after liver transplantation

MR Heldman, MW Sohn, EJ Gordon, Z Butt… - Liver …, 2015 - Wiley Online Library
Adult transplant hepatologists face challenges in providing care to young adults who
received liver transplants during childhood. Because prior studies have focused mainly on …